Pre- surgery immunotherapy

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Hello. I've just joined this forum. I have Stage 3 endometrium cancer. I am taking part in a trial at UCLH for pre-surgery immunotherapy. Had my first treatment last week. Next one is in 3 weeks. Is anyone else here on that trial or has been on the trial?

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and although I don't have the same type of cancer as you I noticed your post.

    As you know, the online community is divided into different support groups so I'm going to recommend that you also join and post in the womb cancer group as you'll then connect directly with others who have the same type of cancer as you and who maybe on this trial.

    To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you. Will do xx

  • That trial sounds really interesting, having the treatment before anything else. I hope that dostarlimab works well for you before any other treatment. It has reduced my tumour to a "sliver"

    I've been having infusions every 3 weeks, for about 15 months.

    It took a few sessions before the cancer pain went away. I have a secondary tumour from womb cancer which is near a ureter and femoral nerve and can't be removed.

    I'm now enjoying my garden and getting out and about with only some tired days. I feel really lucky to have been offered this treatment.

    I hope that everything goes well for you in the future.

    Kx

  • Wow! That's brilliant! Even just a couple of treatments is really good for getting rid of the pain. I'm going to ask if they would be prepared to delay the surgery and have a couple more treatments, depending on what my next MRI shows up. If surgery is still inevitable, I want the tumour to be negligible, so that I can have keyhole surgery. At the moment, they are talking about abdominal surgery to give them enough space to examine surrounding organs.