Hi everyone,
This is my first time posting. I’ve got ER -ve, HER 2 +ve breast cancer. I’m on neoadjuvent chemo. Finished 4x EC and now just had 10 out of 12 weekly Paclitaxel.
About 4 or 5 treatments into Pac I noticed my wrists itching. Over the next weeks this escalated to like prickly needle stabby pain on nearly all parts of my body (feet, legs and arms worst affected). Friction aggravates it.
After about 8 or 9 treatments I could no longer go for walks because friction aggravates it or sit down or shower. Applying moisturiser aggravates because of touching. I use aquaphor spray now.
Apparently it is nerve damage/neuropathy but not the classing numbness tingling people get. For me it’s pain aggravated by friction.
Because of that I think the team missed it and they probably should have lowered my dose. It’s now at the point where it’s unbearable. I’ve only got 2 more rounds left and I’m almost tempted to stop here rather than continue the last two on a lower dose.
Anyone else experience similar pain?
Hello Jas (Jas)
I am Brian, one of the Community Champions here on the online Community. I can't answer your question as I have a very different cancer myself. I am sure you will get your question answered here however, we have two other groups you may wish to join to post your question as it may be seen by other members on the same or similar treatment bath. Here are the 2 links you need:
You can join both groups and copy and paste your original post in these two groups.
I wish you well on your journey and hope you get some answers to the issue you have raised.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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