Hello,
I am writing to ask if anyone has researched or considered going overseas to try treatment that is not approved in the US. I am considering going to Germany where they allow for compassionate care treatment. Specifically am considering a clinic called Biotherapy International. My oncologist does not think I should go but is offering nothing for me here. I have had 6 weeks of ratiation and am not able to do chemotherapy. My tumor is not operable, I have been given only a year to live. I would like to try experimental treatment as there is nothing to lose. I am considering oncolytic virus therapy. I would appreciate any input. Thank you!!!
Hi MarianV3ea24a and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I don't have any experience with glioblastoma, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
