Worrying about anal cancer

FormerMember
FormerMember
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I was Diagnosed with anal cancer in July I had radiotherapy and two weeks of chemotherapy . On my first follow-up scan showed that the tumour had shrunk but not gone And it showed abnormal lymph-node’s that wasn’t on my original scan I was told I had to wait three more months but now my scan has been cancelled I have a phone consultation on the 7th of May but if I don’t get a new scan first I don’t know what the doctor can really say. I’m worried as I have started with a lot of discomfort when sitting & getting up . I’v got pain in my pelvis and lower abdomen I’ve also got a discharge and a very unpleasant smell its not pleasant I have not always got control of my bowels as well. I know everything is difficult with what’s going on with the coronavirus but I’m worried about how fast the tumour grow & the size it was happened quickly so my fear is waiting and waiting may end up being anything that can be done & im only 56 & single with a 12 year old daughter with disabilities & my family are worried & don’t understand why we are left so long between appointments. Can anyone give me advice or support thank you m pugg 

  • FormerMember
    FormerMember

    Hello Pugg,

    My partner has had anal cancer two years ago and the symptoms you are experiencing ( the pain and loosing control ect ) was something he very much went through. He had 27 sessions of radiotherapy and started ( but didn’t finish )the chemo. My partner couldn’t sit down for long as was in a lot of pain and had lots of accidents but the symptoms are treatable and, with him, did go.

    The positive thing about anal cancer is, if it is just in the anus, then it is usually slow to grow. Time is on your side although I know it varies on type.


    I would contact the secretary of the consultant you are under and say how worried you are about your situation.The coronavirus has actually meant that some consultants are quieter than usual as people have been put off going to their appointments. See if you can get an earlier appointment, but if not, keep the telephone appointment and see what is the next step. Be proactive and ask questions and arm yourself with as much information as possible. Tell them about your daughter and how important it is for you to be well to care for her.

    The consultant and their secretary will completely understand that you are uneasy at waiting for the next step with your treatment. Get in touch with the secretary and take it from there. Good luck. X