cancer surgery without anaesthetic

Evening Rosalinda, as you say, every day is a fresh start, dizzy spells here as well and fatigue, "Due to HT", I am glad you are going to wait, hopefully get a few results and a clearer picture before GA and gynae operation, if it should be needed, though hopefully not. I have AF and SVT and manage them without any meds, your trip out with Age UK didn't go so well, I am sorry about that, I'm familiar with being the slowest and weakest even though I am almost always the youngest, hope your going to go again, I think you give me too much credit. I'm sure you would have come to the came decision without me, but if i have helped just a little, I am very happy to do so..

Eddie xx

You helped more than a little. You helped a lot. Thank you again!!

And yes I will try Age UK again, but only the shorter trips. (Have turned down a longer one in a few months time)

Rose xx

Hi Rosalinda hope you don't mind me getting in touch and asking, how did your appointment go this week and how have you been this week.

Eddie xx

Hi Eddie,

That's really kind and thoughtful of you. Well, the good news is that I'm having my gynae procedure without GA the week after next – they are just going to do biopsies as I told them GA wouldn't be an option until I had more input from Cardiology. The bad news is that cardiology have messed up on something – consultant had asked for a test to be done, but it wasn't. I felt upset and shaky when I found out on Friday (people were lovely and did apologise, but it's unfortunate it happened), calmer now.

I am unsure whether cardiology will re-request the test, meaning a further wait of at least six weeks. Everything feels a bit up in the air, but the immediate worry has been allayed. The hysteroscopy will be unpleasant but I'm not scared by it as have had before without GA.

I hope you had a good week. Thank you for checking in on me! Much appreciated.

Rose xx

Hi Rosalinda that's great news your gynae procedure is bring done with biopsies, what a relief, and well done in standing your ground, I'm proud of you, so sorry about the cardiology procedure, It's understandable it hit you hard though glad you are feeling a little more relaxed, surely if it's necessary they should do it and quickly as well, It's the least they can do for all the worry they caused you, but the important thing is no GA, that is good news, never had a hysteroscopy "obviously",  but have had colonoscopy and cystoscopy with many biopsies and no anaesthetic so have a good idea of what's to come for you. Rosalinda I did a CBT pain management course and it made a big difference to my perception of pain so now i can tolerate a lot more, I'm due my brain scan results next weekend so i am a little nervous otherwise I am ok best wishes and good luck with the test,

Eddie xx

Good luck for those brain scan results!

Yes, I am very relieved about the GA. Maybe I should think about one of those CBT pain management courses also. 

It's the genetics (re late sibling) not a procedure got missed (request from consultant didn't get passed on to lab). That sample may not exist any more – the labs destroy them approx  c. 6 months post-mortem. 

Rose xx

Morning Rose, I don't know how labs operate, but you would think any sample with a strong familial link should be kept longer, I'm going to contact AgeUK about those trips but I'm probably too young, fingers and everything else crossed for you this week, take care.

Eddie xx

Morning Eddie,

There were lung samples retained longer-term re genetics but not blood, which is what heart consultant needs. Also, there was a mess-up over the pathology report itself (I had to chase coroner and it turned out there had been an oversight in reporting – lots of oversights!), so everything got delayed more than it should have. It was always going to be tight on the blood sample. I can't imagine it's still there in the lab now. Waiting for MDT to determine next steps...

Age UK are generally very welcoming re trips ... cut-off is 55 not 60 in many areas (possibly even 50 in some places) and if you are close but not quite there just go along with a slightly older friend who is within the bracket. They won't turn you away then. It's only the national helpline that are picky about age. I live with someone a lot older and couldn't get advice on his behalf when I was in my fifties, though I could have attended local age UK events. The irony is that I am now enjoying the Age UK while my friend refuses to go thinking it will make him feel old. (He's in his seventies!!)

Rose xx 

Quick extra note ... People think Age UK is single organisation, but it isn't. There is the national organisation and there are the local Age UKs. The local Age UKs are quite separate and what they cover/offer varies considerably depending on area. Rose x

Hi Rose, you obviously know more about how labs operate than me, so doubt I can offer you any advice, though I can relate to hospital/medical cock ups, had a few as well, and a few misdiagnoses' also, thank' for the advice for Age UK, I phoned them about a hour ago and left my details with a very nice lady who is going to call back after seeing her boss, "I told her my health issues" and my age 58, so hopefully will get a positive response.

Eddie xx