Hello, I'm new here and 3rd week in the hospital with AML that appeared from nowhere. I'm still in diagnosis denial phase and was wondering if there is anybody else here with experience of AML? Tonight I made a mistake of googling stuff which I've promised myslef I wouldn't but still was stupid enough to do so cheers
Hi AnnaD and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I've had different cancer diagnoses to you I know how scared you're probably feeling right now.
The online community is divided into different support groups so I'm going to recommend that you join the AML group as you'll then connect directly with others who have the same type of cancer as you.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Hi AnnaD and a very warm welcome to the Macmillan Community but so sorry to hear about your Acute Myeloid Leukaemia (AML) diagnosis.
I am Mike and help around our Blood Cancer groups and I know from experience having been on my cancer journey coming up to 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable) that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……..
…….. support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support from people who have real first hand experience.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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