Waiting for brain diagnosis

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Scans have shown something on brain, urgent referral to neurology, few more days until appointment. Anxious and scared about what may lay ahead.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and although I've not been referred for something on my brain, I know what an anxious time it can be waiting for results.

    The online community is divided into different support groups where you can chat to others who are going through or have gone through the same thing. So that I can direct you to a group that would be best for you, can you tell me a little more about what you're being investigated for? For example, do your doctors believe this is a primary brain tumour or do you already have cancer and this might be a secondary? Alternatively, you can look through this list of cancer types to choose the right one for you.

    Once you've joined a group, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    As I said, waiting for test results can be stressful so you might find this information about how to ease worrying when waiting for medical test results helpful. We all have different ways of coping and I find that trying to continue with my normal life as much as possible, plus doing things that I enjoy, helps me spend less time worrying.

    Sending virtual (((hugs)))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"