Living alone with cancer

Hi Nanp

I am very sorry to hear you have no support it's very hard for you, I lost my husband 5 years ago but I have a a wonderful web of friends and son and daughter so I can  imagine how you feel. 

Do you have a good neighbour or friend who can take it in turns to take you up for treatment? 

Hi Everyone

So many comments and people who are coping alone with cancer. I am so glad we have this online forum to help each of us feel less alone. xx

Hi..

I am new to the forum....I just wanted to reply to your post.   I too have been on my own throughout initial diagnosis, surgery and chemotherapy.  Even though its been a few years since the treatments I find myself still being triggered by TV cancer advertisements, and the appearance of actors, comedians, celebrities who have where diagnosed with cancer around the same time as me, and have passed on since.  I suppose maybe that this is some kind survivor guilt.  why am I alive and not them?

Since going through all of this stuff on my own, I have found it very difficult to get back to some sort of normal life, whatever normal is. I have to deal on a daily basis with side effect from the treatments and surgery, peripheral neuropathy and stomach dumping syndrome, among other things .When I went through my surgery and treatments I didn't want to know about the cancers expected prognosis and recovery, or not recovery.

I feel lost and alone...

Hello Wayne.

Last year I had right hemicolectomy.  In January this year I was diagnosed with Peritoneal cancer (two tumours).  Had lots of support from my husband.   Four days ago he died very suddenly.To say I am shocked doesnt come near to describing it.   Dont know if I can go on .  Am devastated.

I do have family and there always working when I have a treatment to go to. So I just go alone then only time someone goes with me is when I can’t have the procedure unless I have a driver afterwards.  Other than that I go alone.

Hi

Try and keep positive, I am a fighter who is trying to keep my life as normal as I can. I have a dog which I take out twice a day and belong to meet up groups and local drama groups so have always somewhere to go.

Take care, keep positive 

Sending love and hugs ️ 

I don’t have any neighbours. I have family who all are elderly and live in London. They phone regularly, my took a year off work to take me to appointments. So support is there but patchy. Still lm grateful for anything.

Hi Wayne,

Thanks for the Post.

I live alone with my mental health wellbeing dog Arthur. Who is one in a million.

I suffer with severe mental health issues. I have Schizophrenia, ADHD and Borderline Personality Disorder, as the main issues along with 7 personality disorders. This alone can be a struggle to live with, never mind tumours/cancer, as it is, that I've got.

Awhile ago I was diagnosed with Nerve Sheath Tumours, a 1 in a million type, and a tumour in my spinal chord. The tumour in my spinal chord is benign at the moment. The tumours in my Nerve Sheath Wall are growing. If they turn cancerous, the outcome is painful and horrible, but very swift. there is no proper treatment or cure as of yet. You can have an operation, 50% chance of death, 25% chance of total paralysis and 25% okay.

As they grow, they crush the nerves in the wall and affect the body. My bowels no longer function properly and need a 4 to 6 hour nightly cleanse through a mix of medications. My legs suffer hundreds of electrical pulse shocks that go from thigh to through my feet a day. my legs contort through these shocks. I also feel electric shock/pulses in my chest area and thighs as though a mobile phone on vibrate is going off.

The latest problem I have started having is, pain and muscle spasm going from my right kidney, up the right side of my stomach into my chest, then a blast on the left to follow. This makes me collapse to the ground in pain or walk like a lunatic lol. I have also started with pain in my elbow, wrist joints and hands. This is the progression of the condition.

I will eventually go paralysed, i don't know how much or when. The way I finally go is by going deaf and blind, and then my throat closes and I suffocate. Sorry if the last part upsets, but this is my life and demise for me.

I just want to say to all, if your cancer is at least in anyway curable, then be bloody positive and aim for that all clear. If it can be kept in remission, keep it in remission, for the rest of us good luck. But most of all, do not give up on the good times, they still bloody come. I have made peace and amends with everything I can. I hope you all have too. For I have some living to do.

Much love and respect.

I don't know .uch about the different types of cancer/tumours but my own, seems selfish I know.

I hope yours are curable, and you continue the fight, mine are not.

Would your husband wish to give up, I wouldn't think so. So continue your fight to recovery. 

Much love ️ and respect .