What do you wish you had known about DIAGNOSIS?

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Hi all

In the latest of our new series of blogs sharing hints and tips from members, we are asking:

"What do you wish you had known before diagnosis?"

This could include questions you might want to ask, practical tips or help with anxiety when approaching appointments.

We will be featuring some of your suggestions in an upcoming Community News Blog, but this thread will remain as a resource for anyone who needs it. 

Thank you in advance for sharing your experience and support. 

  • I was lucky in that I went from having a first symptom to surgery within 4 weeks. I know not everyone is that fortunate. However I did find it really hard to wait for the results. The diagnosis came around a week after testing but I could think of little else. Then there was the worry of whether it had already spread. 

    There was then the waiting for the MDT to meet and decide on a treatment plan. When you are waiting time goes really slowly and you can feel like nothing is happening. Behind the scenes it probably is all go but for me it felt a time of limbo. 

    Diagnosis is hard and you just want to know for sure and the uncertainty is hard. For me once I knew what I was dealing with and had an idea of what would happen and when, things felt a bit less overwhelming. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you Jane, this will be really useful to share in a blog bringing together experiences from members across the Community. 

    It would be good to hear from members who have had a longer wait and how they dealt with it too. 

    Steph
    Online Community Officer