Sleepless night

3am: I still can't summon the energy to get off the sofa and go to bed, plus I have got an Italian greyhound between my legs that I don't want to disturb LOL.

3.49am I know exactly what you mean about summoning the energy  I tell myself I will count tio 12 and then get up sometimes it works

I am now dog free so I am going to go for it............... in 5mins 

Hi guys, we have the, awake and up all night thread, on the forum, where you'll find a few peeps who can relate to your struggles with sleeping, and can offer advice and support to help you through those difficult early weeks, I'm into my 4th year of treatment and I too had sleep, motivation, energy and concentration issues to work through, as did other's on the thread and there's usually a couple of us awake to chat to at any time. PS, what your both experiencing is perfectly normal.

Eddie xx 

Thanks for your message I visited the awake all night thread and that’s how I got  talking to GAC1970 I think my problem is if I sit down in the evening or watch television I just fall asleep then you have trouble getting to sleep at night, all the problems you have go round il your head. I hope your treatment is working and I wish you well for the future.

Anabell x

Awww Anabell, I remember those days we'll, and all the advice you get bombarded with telling you what to do, I found, despite what the experts said, a little time on my computer/phone helped me to sleep, but learning to relax made the biggest difference, as anxiety is the biggest hurdle to some decent sleep. Thank you for your good wishes, as I wish you well with both your upcoming appointments, I have 3 girls and a boy who I've told everything "almost " , as there are things they don't need to know, yet.

Anabell, do you have a Maggies centre near you, they were so helpful to me early in my journey, to find your nearest one www.maggies.org is where to look.

Eddie xx 

Thanks for info about maggies I will have a look later. I’m trying to keep busy today so hopefully get a little more sleep tonight. I have 3 sons who I told yesterday I think it came as a shock to 2 of them the youngest is still living with me so he knew I had been for a scan but we had not discussed the possibility of cancer ever though they are adults 

Anabell x

My cancer was found Xmas Day after collapsing late on Xmas Eve. An emergency CT scan showed a mass in my brain (glioblastoma) and kidney (chromophobe) I had an MRI on the 27/12/24 and was being operated on before the end of January. I was given a median prognosis of 12mths to 18mths. I still usually sleep quite well but some days it just won't happen usually when I am worrying about my 20 yr old son who suffered a little bit of brain damage during a complicated birth and who I strongly suspect is on the spectrum. He has no friends and just likes his own company. He also has a brain tumour (an inoperable glioma in his tectal plate) but his tumour isn't that aggressive and has a 10yr survival rate of 85% :)  

I am so sorry to hear what happened to you life is so tough for some people.My husband died 4 and a half years ago of lung cancer as it was during lockdown I did not get the help I should have so I had a feeling I had it but my local medical centre are useless and would not take any notice of me.I have a feeling it has probably been left to long but must try and stay positive. Look at you 4 years later and you are still here.I worry about my youngest he is older than your son and has no problems.He works from home and has a well payed job so financially he is sound but like your son he has no friends and never goes out he says he likes it that way but I think he will be lonely, he goes skiing twice a year with my middle son and about 12 others but that’s it. Sorry to ramble on when you keep things to yourself you tend to do that

Anabell

Telling your kids is a tough, and deeply personal decision to make, but  from mine and friends experiences, the vast majority of the time it was the right one, and having been in the position of my mum telling me she had cancer, was so helpful in how and when I told my kids, unfortunately there are a lot of things families don't want to talk about. good luck with Maggies and getting a little sleep.

Eddie xx