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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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5:25am [started to type]
Been up all night
Head in a spin
Hardly surpising since I have a lot to be thinking about regards my treatment plan for my anal cancer following my initial appoinment with my oncologist on Friday afternoon. Going to be a real roller coaster ride for the next 6 months at least.
I started off by pointing out I am a theorist, I will want to research and understand process.
I already understand a lot of the / terms/ buzz words / acronyms / abbreviations / from supporting my wife sucessfully through breast cancer 11 years ago, dealing with my deceased younger brother's agressive brain cancer 18 months ago, and supporting my mum recently through the death at home of my father who had prostate cancer and Hodgkins Lymphoma.
After the inital shock of hearing my family history my oncologist knew not to bother sugar coating anything or talking around things or waste any time having to over explain things. She is lovely, as is her registar. Both empathetic, truthful, to the point. Which is just what I want. Just what I need.
Onwards . . .
Note to self: you must get your sleep pattern re-regulated
Morning Jo0Lz and welcome-I don’t think I’ve seen your name pop up before in the group, but things move quickly so I might have missed it. I’m more of an awake very early type rather than awake all night person but chat goes on here at any time so we all fit in!
A recent diagnosis can be a disruptor of sleep as your mind works through everything, but hopefully in time this will settle. I remember when I was first diagnosed and going over my family history with the consultant he looked like he’d had a kicking himself-a mixture of pity and sadness. I resolved then to remember I was an individual, not just a statistic.
We all deal with stuff differently but it sounds like you’re a very practical person who thrives on knowledge. You’ve been through a lot, but come across as being ready to deal with whatever you need to do-that will stand you in good stead.
Sarah xx
Morning Dingg
Sorry I missed you last night sweetheart, but I think watching the latter stages of Eurovision temporarily cured my insomnia. It should be bottled!
Something else that should be is your incredible resilience Dingg. You're formidable, now taking on training in hubby's IV maintenance - amazing!
The hospital should give you a copy of their discharge policy when hubby's due to return home, and district nurses should also play their part once he's in situ. That'll be further down the line, but Age UK and Carers UK can give more advice about planning a safe hospital discharge if you open their links.
Good luck with your continued training today sweetheart, and remember to eat - food is fuel. Tight hugs and much love for you and your hubby xxxxx
Morning Helen
Big day today with your holiday approaching, and I'm excited for you and Alan. It's like having a jolly by proxy!
What a shame you didn't have a bet on the winner last night as you'd called it right but your holiday will make up for it.
When you mentioned a few weeks back we'd hit page 666, we've now reached 999. Ooer.
Have a smashing day and get the motorhome revved up xxx
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