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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
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Morning everyone, and sending good wishes especially for scans today and hugs for anyone needing an extra cuddle.
My Nyx is feeling much better today-back to eating and purring, and more importantly going to sleep last night cuddled up to me with my arm round her holding her paws. Phew! She’s much happier this morning.
My OH is not so good again after a few good days, but has gone in to work. Will be heading off to A&E this afternoon again-we need a season ticket there! The consultant said any changes in pain or pee colour means A&E is required, so just following instructions-we can’t have sepsis again! All this cost to the nhs with admissions, treatments and procedures is madness when surgery should have been done last year to avoid all of this. But there we are, just have to get on with it.
Anyone here who thinks they are selfish or not doing things as well as they could be-get those thoughts right out of your heads! You are all amazing and providing brilliant support and friendship to everyone in the group. Be kind to yourselvesl
Sarah xx
Well said Sarah (SarahH21)
Anyone here who thinks they are selfish or not doing things as well as they could be-get those thoughts right out of your heads! You are all amazing and providing brilliant support and friendship to everyone in the group. Be kind to yourselvesl
You are a great bunch on here providing fantastic peer to peer support to all who need it - You are all amazing.
Kind regards - Brian.

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Hi Dingg
Ive just been chatting to my son who is a director of nursing about the dnr. Apparently the decision for a dnr can be made without consent as it is a medical decision but it is extremely bad practice to put it in a patient’s notes without consultation with the patient and or family. He said it happens all the time and he has so many complaints where the drs do not consult patients and he said it’s usually the poor nurses who have to make the apologies. I’m so sorry you’re having such a rubbish time and hope that things start to improve for you soon. Sending hugs
Linda xxx
Dingg, I'm glad that the doctor removed the 'do not resuscitate' note from hubby's records. I'm amazed that this note was not discussed with you or hubby beforehand. In the early stages of my cancer drama when the medics were fighting a losing battle against my blood loss, I was asked by a senior doctor whether I wanted to be resuscitated if I became unconscious. His attitude was caring. He pointed out that often resuscitation of a gravely ill patient can prolong the agony and distress. At that time I was most certainly distressed and in pain. I saw the possibility of the lights going out permanently as more preferable than more of the same. He presented a DNR form to me which I signed. I mentioned it to my son. A couple of weeks passed. Honestly, I was not 'hanging in there' but wanting to slide away in the first of those two weeks. A series of events medical and non-medical took place which slowly changed my fortunes. By the end of the 2nd week I could feel a glimmer of hope. During the 3rd week I asked to have the no resuscitation note removed. I'm still here, much to my surprise, 8 years after those intense weeks. All patients will have different circumstances and have to deal with different medical personalities. I think you are steering through this remarkably well with your husband. We will all be with you as the future unfolds, hoping for the very best. Love, Ray xxx
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