Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hello  I can see you are new to the community and posting, and you’re very welcome to join us all. Your poor husband is going through the mill, and I get that you have this need to be strong for him, but it’s really ok not to be strong all the time…it’s just too much to manage that, so please don't feel you can manage this on all on your own.

    This is a lovely group to come on to when you can’t sleep and you’ll find lots of like minded souls who appreciate being able to chat when sleep eludes us-you’ll be among friends experiencing all sorts of different things with this disease as patients and carers, but I’d like to also give you some links to other groups in the community where you’ll meet people in the same situation as yourself, and your husband, and this can give you some extra support.

    There’s no pressure to join any of the groups-if you want to just chat on here, that’s absolutely fine, but these groups might help if you need that extra little bit of support.

    Bowel Cancer Forum

    Family and Friends Forum

    Supporting Someone with Incurable Cancer Forum

    I hope you have managed to get some sleep so you are ready to face another day-everyone is here for you no matter what time of the day or night so you need never feel alone.

    Please take care

    Sarah xx


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    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Sweetheart, and a warm welcome to the forum from me, though I'm truly sorry you have to be here, and what you and your husband are going through. I can't add much to Sarah's post, but know from experience being the carer is in many ways tougher than being the patient, so it's so important you look after yourself, giving yourself a little time every day to unwind and recharge your batteries, will help you so much with the awful situation you are both going through, and if you need to scream, shout or rant, then do so, but please grab all the support you can, I too am stage 4, and have wonderful support from my family, but knew from my time in healthcare, the addition of outside support benefits everyone, and having my district nurses, hospice and their palliative care team on board has been wonderful, sweetheart, they are NOT just for end of life, I've had them for nearly 2 years, and the support they offer me and my family is priceless, the guys on here are pretty good too.

    Eddie xx 

  • Morning Eddie

    My apologies-I’ve realised I didn’t reply back to you yesterday. It’s a fast moving chat here and sometimes I miss things! 

    That’s good advice for  and I’m sure it will be helpful for her. You have such a positive experience of hospice and it’s good for others to know what’s available there. My friend and neighbour 2 doors down volunteers at our local hospice and says it’s a wonderful place. All of you who volunteer do a terrific job, and I’m sure you get a lot out of it yourselves. 

    Sarah xx


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    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Sarah, no apologies necessary my friend, I  too find it difficult to keep up with the forums at times, and I've been volunteering at the hospice for a lot longer, than I've been a patient,"mostly an outpatient," and would love to do more, but it's not possible any more, but it's so rewarding, and something I believe benefits everyone who does it. 

    Eddie xx 

  • Hi Eddie

    I fell asleep when I went to bed tonight and have not long woken up again so I’m in a bit of a muddle right now! I’ve taken my last lot of tablets for the day so I’ll likely zonk out again very shortly!

    I think what you do with your volunteering along with everything else you achieve is incredible. You cope with so much and keep so busy but it sounds like you might be needing to slow down a bit? I often feel I don’t accomplish much in my day, so your level of activity rally puts me to shame. I’m hoping that I can start to function a bit better better with my new pain medication but it’s a struggle sometimes.

    Things are quiet on here tonight-I hope some are already in the land of nod and getting some rest.

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Awww, bless you Sarah, but I'll say what I always say, I  get far more out of the community and volunteering, than I put in, I  have just had nearly 2 weeks away from the forums my friend, looking after one of my grandchildren, my little angel, she's just turned 1yo, and I'm sure your being too hard on yourself, your a community champion, and I know from #Millibob, all the time, effort, and dedication you guys put in to the roll, and I for one can't thank you guys enough, and I will have everything crossed your new pain management, gives the results you deserve, oh and thank you for mentioning taking your tablets, I'd completely forgot to take mine, so you see your helping others, without even knowing it, well time to take the dogs out before MEDS and bed, sleep well.

    love Eddie and Sheila xx 

  • Morning all

    I woke up at 3:30 and couldn't settle down again so I'm downstairs, I've had my first cuppa and I'm catching up with some soaps. 

    We're taking the last of our visiting family to Canterbury today to get the National Express up north, then we'll have our house back to ourselves. 

    I hope you're all getting some sleep. 

    H

  • Thanks Eddie-I completely zonked out just after I posted but back awake for the day now. At least I reminded you to take your tablets! I’m on 16 a day now and still have trouble remembering what to take and when! 

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Morning H

    It’s lovely to have visitors but a bit of a relief when you get the house back too isn’t it? I hope you’ll get back into a better sleep pattern now all the excitement of the wedding is over and peace descends on the house once more! I’m off for my first cuppa of the day now but enjoying the warmth of my little cat snuggled up beside me. 

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Morning Sarah; glad you managed some sleep lass and hopefully it'll set you up for the day.

    Blimey, so many tablets - you've got a veritable chemist shop at home!  My brother's on loads for various ailments, but told me my SiL gives him little help with anything, which I think is damned selfish.  He's 77 with poor mobility, and I wish I could help him out as I love him loads, but he lives near Darlington so it's a no no.

    Enough of my growling!  Here's hoping you have a good day and take things easy.  Hugs xxx