Awake and up all night

just had a chuckle ray trust you to ask for whiskey. however i can understand why it is a painkiller.

Hi Steve and sorry I didn't get back till now, but I did OH's care routine and promptly zonked out for a while.

Anyway hon, please take the advice from others about coming off codeine. My ex husband got hooked on powerful painkillers and it ended in the worst case scenario, tragically for him.

What you really need to do is to make an appointment with your GP and tell him of your dependence on the tablets. He should be able to give you a programme to gradually taper you off them, as it would be folly to just stop outright. It's worth giving this some serious thought to free yourself from them and any potential damage they could cause. This isn't meant to scare you Steve, just a nudge in the right direction as we all care about each other here.

Hopefully, you'll be asleep yourself now hon xxx

Hi Dingg. As I explained to Steve (Milkey) I fell asleep after OH's care so just replying now.

Great advice from others here about why hubby's fatigued, so I hope that's put your mind at ease. When OH had his trache tube in hospital, he wasn't allowed to eat or drink anything at all and that ruled out swallowing too. He was thirsty all the time, so the nurses gave him pink sponge swabs, soaked in water, to chew on. They provided a little respite from his raging thirst, but he had to do this for over two months, so I hope to god hubby won't have to go that length of time.

Here's the good bit. After everything he went through, and once he'd passed his swallow test, he began to regain the 4 stone in weight he'd lost and his recovery began. I know both our chaps have different issues but there are similarities, and I totally get where you are now as I've been there too, sweetheart. I hope you're asleep now, but put out a call anytime you want and I'll try to respond.

I know exactly who John Charles was - one of the greats who also played for the team I've supported for going on 55 years. We pass the John Charles Centre for Sport almost every time we go to Leeds for OH's appointments. Hugs and love sweetie xxx

Morning all

I slept like a log last night, not getting up until 6:30!  The sun is shining here.

 Dingg Everyone reacts differently to chemo, and different cancers have different chemo meds & regimes.  Unfortunately there is no normal to people's reactions. Ask for advice, maybe ask for a MacMillan nurse to visit while you're at the hospital for some advice or call the helpline while you're there with hubby.

 Milkey As others have said you should speak to your GP about the painkillers.  None of us here are medically trained so can only speak from experience and not advise you.

H 

Is it starting soon ?

Hubby txt he's feeling better this morning.

Just read in Daily Mail Pembrolizamab is rolling out as immuno therapy in a single injection in England so its done in seconds not 2 hour infusions of an immunotherapy my hubby just had.

In the comments a woman had inoperable lung cancer and after immunotherapy she's still well 3 years on, so its good sign the new immunotherapy  are developing fast.

Thanks for the kind reply x

Well, I woke about 6am after a good sleep and had an episode of chemo vomiting! Lovely! It's gone off now and I'm keeping water down. Often feel queasy at the weekends but today was the full show! 

Hopefully,  it's a one off. Will be taking meds later, to make sure I've settled down a bit.

Happy Monday!! xxx

I saw that article too. It's similar to the procedure I have for myeloma but not the same drug. The injection takes minutes but I'm still there for an hour or so, lots of checking and obs still but it's quicker than a lot of people in there xx

It's amazing what those scientists are finding out! Very clever people and thank goodness for them!! We owe them a lot xxx

So sorry to know this, my mum used to take very small sips of cold milk from a straw and either sit outside or with windows open to get more oxygen mum said. It seemed to help her. Hope you feel a bit better today x

That is fantastic news dingg. Cancer treatment is moving ahead thanks to all the research. Thank you for letting us all know. So pleased to hear hubby is doing well. I have said my prayers for him.