Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • I will say there is a lot of bad gypsies about but as long as my daughter is OK and i no about her husband which he is a good man because my daughter started working with me at the bus company that i worked for i did not think that my daughter would work with me my god 

  • It is definitely different to tiredness. The first time it happened, I was thinking what the hell is this. I spoke to a nurse, who explained what it was. 
    You just suddenly have to sit or lie down. Thanks Gill. xx

  • My wife was blown away by the deep level of tiredness she felt.

  • Thanks Sarah. Aww, bless you. That’s a lot of sessions. I agree with what you are saying. We are definitely more aware going through treatments. 
    I don’t know if it’s sunk in yet that I have finished. It will probably just take time. xx

  • So did you blow things out lol 

  • Oh crikey Kez, thank goodness you're on the ball - I hope you'll have someone with you if you're out and about in case the fatigue takes over.

    I asked OH if he could explain, via his writing board, how it made him feel at that time, but I was no wiser and his hieroglyphics made me think he was on another planet. I hope yours abates soon sweetheart - OH took a good six months before he stopped napping several times each day. He did have 30 fractions though, so hopefully you'll cope better xxx

  • Thanks Julie. It’s definitely a rollercoaster. 
    You take it easy, and get plenty rest. I hope you enjoyed your lunch? 

    Well done. Treat yourself to something nice with your winnings. Sending hugs back. xx

  • I don't know how old you are ukiboy but it is so nice to now about what you're life was back then it is so nice to now how people live in the other side of the country 

  • Humble beginnings. I had an outside toilet till I was 16. Not great in the winter, although it did make you hold on in the night.

  • Gill, many years ago (1980s) a gentleman who often frequented the pub which we used for business lunches disappeared for a few months. When he returned, he explained that he had had his voicebox completely removed. He was able to do this with a small hand held battery tonebox held against his throat. He used his tongue and mouth to shape the words. We all quickly overcame the strangeness and he joined in conversations without difficulty. Is that a future option for your OH when he has recovered more fully from his treatment? You are both doing well to adjust to the new communication method. I expect you can read each other's minds to a large extent. If he is left handed like me, my hieroglyphics are also difficult to read despite never being a doctor. It is just as well most prescriptions are now printed! Ray x