Awake and up all night

I was having a great night's sleep until my husband decided to turn the fan off and knock it over! This was around 3:30 so I didn't get back to sleep and ended up coming downstairs and catching up with some Corrie.

I hope you all got some sleep.

H 

H - Oh gosh I'm sorry your husband spoiled your sleep, but I'm afraid that did make me chuckle - sounds like something my dad would do and in better days Mum would not have let him hear the end of it!

Annette - I hope your pain settled down and you were able to get a good rest.

Mum eventually settled into a lying position around 3.30, so I've caught a few hours. Thank you both for talking x

ibkm said:

Oh gosh I'm sorry your husband spoiled your sleep, but I'm afraid that did make me chuckle - sounds like something my dad would do and in better days Mum would not have let him hear the end of it!

We did laugh and I have reminded him about it this morning. 

H 

ibkm said:

Mum eventually settled into a lying position around 3.30, so I've caught a few hours.

That's good

H 

That’s great you managed to get some sleep, I actually managed just short of 3 hours which is good for me! I hope your mum has a quiet day. Do you have.McMillan nurses or local hospice nurses call in during the day or what help do you get? Will you manage a nap in the afternoon or just even relax for a while?

Morning Annette and I'm glad you've managed to get some sleep in - hopefully you'll get some naps during the day.

You're so right about being able to spend a last few days/hours with a parent.  Although in hospital, I was with my mum when she passed and I'll be forever grateful for the privilege.  It was peaceful and helped a great deal to quell the grief.

Wishing everyone a better day for whatever lies ahead.  Sending hugs and strength xxx

Hi Annette, 

Glad it was a relatively good night! 

Yes, we are being supported by some wonderful district nurses and a personal care team. I know the NHS is going through many struggles at the moment, but I have been blown away by the efficiency and care we've received from the palliative teams. 

And thank you Gill, hugs and strength to you and everyone today. 

cold cap is not an option, it won’t work with the treatment, my options are wigs or embrace the baldness, I know it will grow back it’s just so hard to have such good news or well better than expected but still have to accept hair loss 

Hi Chloe

My friend Jane2511 who is the community champion in the womb group, had the paclitaxel/carboplatin chemo treatment for her womb cancer and successfully used the cold cap. This is a link to her blog-

Cancer Blogs-Scalp Cooling

Sarah xx

Hi Chloe, I was on an oral Trial Drug and after a few months my hair started thinning and at bits you could see through to the scalp. I was terrified it would all fall out. When I asked my onc she said the problem with trial drugs is no one knows what the side effects are and she referred me to Maggies to get a wig.

Long story short. I hated it, it was too hot and itchy, hairdresser said it was because I still had some hair underneath. She gave me a couple of nice scarves, they were fine.

It wasn't vanity with me, I just felt the wig told people I had cancer & I didn’t want others to know. I saw someone else wearing a wig and she looked great. The mistake I had made was choos one that looked like my own hair! She had short curly hair before and now wore a shoulder length different colour, it looked amazing!,Good luck Chloe!