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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Oh Annette, how sad that you lost your brother to this disease and for it to have happened so quickly. That must have been incredibly difficult and very scary for you.
I went and read your profile-what a story of resilience and strength-no wonder your oncologist calls you her miracle patient. I’m in awe of what you’ve been through, and you still maintain such a wonderful attitude-you are a remarkable person.
It must seem so cruel that your husband has had to go through cancer too-life can just simply feel very unfair at times. I hope he’s doing as well as he can be, but what a formidable force you must be by his side!
Sarah xx
Morning lovely.
Oh, that's a shame, but do ask your CNS - tell her you've heard glowing reports and feel you'd benefit from the scheme. Failing that, ask if there are alternatives, as the exercises provide a boost, even for me!
Best of luck for today hon, and keep in touch. Hugs xxx
Hi Gill
I looked up Active Together and discovered it is actually available in Doncaster and Bassetlaw which I didn’t know about! It doesn’t cover my type of cancer but good that they’re trying to increase their range of people who could benefit from this in the future.
Sarah xx
Hi Sarah.
That's good to know and I hope it does become available to more folk. I'll ask Jenny, the lass in charge, to see if she can give us any information about expansion of the scheme. There are a few at the Friday group, of varying ages, but I don't know which cancers they have and it's hard to tell really. I'll let you know later in the week if I get anywhere, as I'm very nosy.
Love Gill xx
Haha-the “very nosy” comment made me laugh! According to the website, participants can take part on the basis of a very limited number of cancers. I’ll just wait for you to get an update and let us know so we find out more information.Well done for being our scout on the ground!
Sarah xx
I'll do my persuasive best Sarah, as I want to know too now. I know Eddie got turned down, but all he said was he understood why and I had no intention of pushing him. A few at the group have obvious mobility issues, including my fella, so it could be dependent on that too?
Anyway, I saw your post about the campervan bird feeder this morning - I hope no more parts drop off! I'm annoyed with our birds as I bought their favourite fat balls that they go crackers over - they've steadfastly ignored them all day. The ungrateful little blighters!
Might see you at a ridiculous hour, much later on.
Love Gill xx
I know Eddie has done a number of complementary therapies and exercise classes run at the Aurora Centre in Worksop as he’s recommended them to me. I wondered if he was because he had done a number of courses and they were giving someone else the opportunity to take part, but I’ve no idea. But it does say for our centre in Bassetlaw it’s for patients with colorectal, lung and upper GI cancers, so maybe it’s restricted because of that? I wouldn’t qualify to get on it for my own cancer, despite the fact I need to use a wheelchair, but I’d probably be ruled out for my lack of ability to move/walk anyway.
The campervan bird box is out of harm’s way now until a repair can be achieved so it's now merely an ornament! Birds can be fussy creatures-it took them a long time to decide it was safe to have the feed we put out!
I’ve come to bed but expect not to sleep much-I have a gp appointment tomorrow, so will no doubt have that on my mind, but I am tired. I’ll see how I go!
Sarah xx
So today’s appointment was mostly good news… the PetCt results were back and actually showed the tumour is not as big as the MRI made out (9cm) it’s actually only 4.6cm x 5.2cm the chemoradiotherapy will be for 5 weeks and brachytherapy will only need one over night stay to finish…
However because the PetCT downgraded my tumour, they want me to have neoadjuvant chemotherapy (paclitaxil and carboplatin) for 6 weeks and that’s to ensure cancer doesn’t return in the future… the downside to this that I’m really struggling with it will mean my hair will fall out from the first session within 7 days, the CNS was very honest and said it can be brutal for some patients because usually still feel in a fit and healthy state, they said cold cap doesn’t work with these drugs so wigs or embracing baldness are my only options…
Because I’ve had my appointment before the mdt I’m still awaiting an official stage but consultant said stage 2A2.
I know it’s positive news but I feel so deflated about losing my hair.. it’s a big part of who I am.
Hi Chloe1306
Congratulations that it's mostly positive news!
It sounds like they have a thorough treatment plan worked out for you. It's great news that the tumour is smaller than they thought too!
Yes, it is disappointing about losing your hair during the chemo treatment....I have not had chemo, so I'm not fully up to speed on things....but I'm presuming it will be a temporary hair loss? I have known several people who have lost their hair, but it has grown back again quite quickly. I do hope that will be the case for you!
And I'm aware that you can get advice and help with wigs, turbans etc through the Macmillan centres, and Maggie's centres, if there is one near you, and if you want to go down that route.
Hope all goes well at the MDT meeting!
xxxx Puddock
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