Awake and up all night

Can't sleep, I got my prostate cancer diagnosis yesterday, I have my ct scan this Tuesday and then my bone scan. Worried about what this will show, hoping it hasn't spread

Hi and welcome. Hopefully you have managed to sleep if not apologies for delay in response.

The forum is divided into  different bits to help you find the sort of support you are after more easily. There are sections for different types of cancer, for carers etc. You can find a list as a drop down menu under search.

This bit here is for folk who can't sleep, like yourself, and where you can share what's on your mind etc. The people here all have their own health or care issues so may not always be around when we could really do with a chat but we discuss all sorts of stuff including cancer and raise a smile where appropriate.

You will find others with prostate cancer experience under that search term but you are welcome to stay and chat here too. Across the community, more people are around in the daylight hours.

I understand that your thoughts are whirling with what ifs and waiting for results is always an unsettling time.

Good luck and once you have your treatment plan you will feel more in control.

Do you live alone or have someone around supporting you through this process? Do you have a named cancer nurse?

Hopefully you are sleeping so nyt, catch up soon

Morning Fred

Sorry to hear about your diagnosis. You've come to the right place to share/vent. As well as cancer we discuss everything and anything and it sometimes helps take your mind off things. 

H

Morning all 

I was up before the lark, well just before 5am. My first cuppa was a lemsip as I've been coughing again all night. 

We're going for breakfast this morning with James, Ashleigh and the grandkids.

H 

Hello Fred, and another welcome from me for when you look in. 

So sorry to hear about your diagnosis hon and yes, the waiting around in limbo is the worst and effectively cancels sleep as we know it. 

Great advice from Shimmers about regaining some control once you get your plan, which in turn should improve your ability to settle back into a more regular sleep pattern, something we all need when we can get it. 

Do join the prostrate group when you get time fella, and sending you the best of luck for Tuesday with virtual hugs  xxx

Morning Helen

Our lucky lark must still be in his nest as I can't hear any singing, just clanking about from next door. 

Oh crikey love, I hope the Lemsip calmed things down and you're able to enjoy a real cuppa now. Wonder if all the fireworks smoke aggravated your throat  ?

Anyway, a good breakfast with the family should cheer you up so look forward to that  

Think I'll get the kettle on here. Take care and keep the chills out as you need to get back on top for your next MH  adventure ️ xxx

I've had a real cuppa. Definitely better than the lemsip!

H

I'm likely to turn up here from time to time because I am on intermittent self-catheterisation. This is on an average 5 hour cycle 24/7 so obviously plays havoc with any normal idea of a daily routine and puts paid to any hope of 8 hours straight sleep. In fact that could be dangerous. The erratic sleep pattern has not caused me a lot of problems, maybe in part because the cancer just saps my energy so I am not rushing around and getting tired. I also have prostate cancer. The diagnostic process only really began when I got a psa result of >5000. I was told the significance of that immediately and in a sense the next 3 months of scans, biopsy etc were almost academic and confirmed what I had been told. Not so academic for clinicians but my concern was the overall scale of it. 

Hello Fredthered, fellow prostate cancer patient here, you should check out the Prostate Cancer forum, there is a "just diagnosed" section. (When you go there be ready to share your age, your PSA, and your Gleason score.)

I know a new diagnosis can be a big shock, but your doctors and nurses have seen it all before and will be able to recommend the most suitable treatment. Even if the cancer has spread there are a variety of treatments available.

I have found the PC forum very helpful and although everyone has a different story, it's reassuring to know that other people have been through what you are experiencing. 

(I have only just found this forum which is more of place to chat - and I like that too!)

Best of luck with your scans,

Angus

Hi Daisy,

I know we haven't "met" yet, but I'm very sorry to hear your news.