Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi oh yes just t9 think about something worky is brilliant. 

    Yes he woke up just now crying cardiff went a bit fire works crazy for about 2 half hours but gone back off now bless him. Hes non verbal and has developmental delay. Hes the apple of our eyes though. His smile has brought us joy even on the darkest of days over the last 11 months. 

    Hows your day been xxx

  • Helloooo Wave 

    Yes I am fine! Been busy and cranky thanks to foot grief and crashing clutching phone before getting to chat!

    Just caught up here 

    Cheers

  • Wave  How are you doing? How are the fireworks near you?

    Cheers

  • Have you moved somewhere new?

  • He sounds gorgeous and he's got all your love to wrap around him.

  • Pippin was very jumpy tonight with all the loud fireworks, but he's settled now.

  • Got to have a CT first because the MRI detected enlargement of lymph nodes. Next surgery date is 19th November. 

  • Ok that's nice . I have 2 cats 

  • Hello Mariab, operations get postponed or cancelled for all sorts of reasons e.g. surgeon is off sick; Equipment has developed a fault; an emergency has shoved the list to the right, new medical results need further review before proceeding etc... All understandable but completely unnerving when you are on the receiving end. In 2017, my TURBT (Trans Urethral Resection of Bladder Tumour) was cancelled on the morning of the op. I was all gowned up ready for being wheeled into the theatre but results from my pre-op echocardiogram came through, making the surgeon and anaesthetist get cold feet, wanting to consult cardiology before going ahead. I was told to get dressed and go home. I was then told after a week that they were organising a plan B which was radiotherapy. It took place about 4 weeks after the cancelled op.

    Your rescheduled surgery on 19th Nov is a day after my TULA (Trans Urethral Laser Ablation) which has become necessary after symptoms returned more frequently. Camera first, then if they can safely burn offending growths away without risking the bladder wall, the laser will be used. So I could end up with a camera then 'sorry mate, we can't use the laser technique on you. Get dressed and we'll be in touch.' The twists and turns of this cancer ride are not much fun, even if you enjoy a roller coaster ride in other circumstances. All the best for your surgery. Come here as often as you like. Lots of moral support is available on tap. Ray xxx 

  • Back again. There seems to be a lull in the fireworks and actually Fingers crossedless of the car battery sized ordnance of recent years. Midnight no doubt will see a new round. 

    Thankfully Stressy's dog is mostly untroubled but previous pets have been utterly traumatised.

    Ooh Macmillan have asked me for quote on how helpful the forum and this thread in particular is!

    Any thoughts?

    Cheers