Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • No worries hon, that's why we're here even though I know I sound a bossy mare! 

    Ooh the caramel latte sounds like a dream Yum Great idea for chocolate and a movie Popcorn to get your mind away from the other stuff. And get your feet up too.

    I'm fine sweetie, and thanks for asking - just my OH to cope with. You'd never guess I'd been treating him to all sorts this afternoon. He did write a thank you message on his board, but he needs to tell his face that I've not exactly been tightening the thumb screws. Sheesh!

    You pamper yourself this evening hon, as you deserve it xxx

  • Hi Me it takes ages to process things I found it just sunk in gradually. You’re right you need to put yourself first and take things one step at a time. I hope it goes well with the dressings tomorrow. Sending love and hugs

    Linda xxx

  • Looks lovely Helen xxx

  • Hi Gill oh thank you for your lovely message really means a lot. I cant believe how i seem to be getting everything my system and body must be weak. 

     You are amazing. 

    Glad you got the m&s goodies certainly makes it worth your while when you got something nice to eat. 

    I need nice winter clothes all mine too big for me now after op and chemo. So going after i get my results next week. 

    Have a lush evening hun. Hope OH is happy now. 

    Big cwtches sent to you hope you have a good sleep. Xxxx

  • Hi oh beautiful place hope you are relaxing and enjoying the views. 

    Thank you very much xxx

  • Hi hun. Are you at hospital for dressing removal or your GP?  Either way they will understand that it is a an emotional and worrying time. 

    Hopefully you won't feel rushed as I am sure all the info on caring for the site etc will be difficult to listen to as you adjust.

    You are quite right in that you have had no time to process as you have been getting on with the 'doing and undergoing' in these few short weeks 

    Have you got any support within your medical team? A named cancer nurse?

    Cheers

  • Umm ... you may want to take back my award. Earlier I was offered a pay before you come appointment and accepted it. Murphy's law meant that the dental teaching hospital in next city then surprisingly offered appointment for tomorrow. I accepted it too as suspected paid appointment wouldn't actually do anything today.

    My mouth is in dire straits... I have severe dental phobia and having eventually signed up as a patient few years back, got referred to our dental hospital due to phobia and anesthesia problems.

    I went to couple of appointments before treatment began and then ....covid n stuff n eventually needed to be re referred for which I needed a dentist. By this time my dentist had binned NHS patients.

    Soooo mouth is dreadful... I arrived at appointment today and was suddenly very hot. Told reception have major phobia and they were lovely.

    It's an old terraced house so went upstairs to treatment room and ...

    post this bit 

  • Part 2

    I announced phobia and again staff really fabulous ... but physical reactions kicked in ... on brink of passing out, couldn't feel limbs etc. They gave me cola for blood sugar but the state continued... I felt dreadful.

    So although I didn't get to open my mouth, we eventually agreed on an urgent referral to our dental hospital ( usually a horrendous wait so how long is a piece of string?)

    I insisted on making myself at least sit in the chair before I left and got a pic n brave sticker.

    They said I could spend time in their waiting room as still in such a state but I opted to go sit in my nearby GP waiting room until I felt half human.

    So am now at Stressy's and have had a nice lie down. Parkinson's pal here for tea.

    Not really eaten since breakfast yesterday so going to try food!!!!

    Will go to urgent teaching hospital appointment in morn ... I need to get to grips with my reactions and at least know it might happen this time!.

    I will back in a  bit to chat about you and others.

    Cheers

  • Thanks so much cherub, and OH is happy now he's tucking in to the steak, mash and carrots meal that was also of his choosingThumbsup

    Hey, it's all you lot here that's amazing, coping with everything that's thrown at you but I hope you manage to climb over the latest hurdle and head for the winner's podium. The antibiotics will hopefully get you back on track. (Cheesy sporty stuff but grab this, you're a champ - Trophy )

    That's a grand way to treat yourself after the results, with some new, and smaller, clothes (I wish) and some M&S goodies for the family Yum

    Thank you hon, and you have as lush an evening as possible too. I like that word so much that here's lush cwtches sent by Lush Post. You'll have us all chatting Welsh before long my lovely xxx

  • Aw Shimmer my love, it must be dreadful to have a dentist/ dental work phobia, but is there anything you could take like a sedative or a full bottle of Jack Daniels? I'm definitely not taking back your award but giving you another sticker for bravery. It all sounds rotten to the core and I'm hoping they'll get you sorted out asap.

    Don't hurry back till the jitters have settled down somewhat hon. Take extra care xxx HuggingHuggingHugging