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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Hi. Just a quick hello. Stressy has itchy pants so wants to 'do something' but not sure what. Also winjng got no money too.
We have been to play 9 ball but couldn't get a snack there as 'no money'. Back at house he want to go back out! I mention food and took dog to park.
Got back n he announce he is going Aldi then to pub kuz match on n Scooterless going too.
Soooo I decline pub. He is now munching huge bag of crisp type snacks. Siiiigh! Great for diabetes pre beer!!!
Ooh some slept while others were up very early!
Ooh RayMK s bedroom episode reminded me of the time years ago that one of our gerbils escaped. When my parents went to bed they heard it behind their heavy wardrobe but it wouldn't come out.
My mother had the bright idea to bring their cage up with its pal in and place it by the wardrobe..Eventual success but she wondered what the neighbours thought of all the late night noisy shenanigans and cries of ' closer! No move it! Is it in yet?'
Cheers
Brilliant! Just what we need on a Saturday afternoon. Between you and Ray we don't half get our comedy fixes/farces. Brian Rix has got nowt on you two xxx
Totally agree! Am currently under a blanket as it's cold down here so could do with a laugh!
Hospital just sent a message to say they've changed my in person consultant appointment to a phone call on Tuesday. I have a blood test 10 minutes before the the appt so not sure how they expect that to work!!
You'd have thought that ending up in A&E and ICU might have qualified me for a face to face follow-up appt!!?? It might not be much to them, but it was a lot to me!! I have questions that need answering!! xxx
Aw flip Julie! That's just ridiculous and I'm angry for you hon
It wouldn't surprise me if it's because of the bank holiday - consultant on a lounger with cocktail in one hand and phone in the other to you - but that's not taking into account the blood test!
The chances of you getting anywhere over the bank holiday weekend are slim, so here's what I'd do. A passive aggressive email, now, outlining how you're being compromised and put in the impossible position of being in two places at once. I'd also drive it home that a face-to-face is imperative after your recent experience and nothing else will do. But that's my way and only you can decide what's best for you, lovey.
Keep warm and keep calm sweetheart. Hugs and love xxx
It happens quite often. I think the various departments, apart from being busy, have at best clunky software that makes communication slow and unreliable. Some parts of the NHS seem unable to access records in other parts. Is your blood test at the same hospital/medical facility as the consultant? If so, invite him down for a face to face whilst you are having it. Tell him/her to bring a cup of tea for you as well. I hope it can be sorted out. More leg work and phone calls for you to deal with! xxx
Make that a BIG rant! If you give a clear message you're not prepared to be mucked about then it might just work.
Would you be prepared to delay the blood test till it can coincide with a new, and quick, appointment with the consultant, or must it be done on Tuesday?
They haven't half messed you about hon, but unfortunately we're all just numbers to them. So sorry about it all Julie xxx
Its probably no surprise to hear that I wouldn't accept that
Your message is probably a 'do not reply' one but somebody triggered it today.
Ring the appointments number, that's the general number for all appointments. At least ascertain if consultant is in attendance on the day.
Also ask to speak to consultants secretary. You will probably be told not available .. till Tues. So emphasise you need to leave an urgent message, to avoid a missed appointment that we are always being told costs NHS a fortune.
Cheers
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