Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Ukiboy thank you so much each day is a blessing isnt it. Too see the birds in the trees or listen to the wind blowing is wonderful. The little simple things give me so much joy now. Hope you have a lovely weekrnd xx

  • Hello. 
    I completely agree with you. It’s the little things that I am picking up on too. xx

  • Thanks Amanda.  I was fine on the first 4 rounds of chemo, apart from when it finished my feet began tingling and I still have heel pain (as well as dropping the vacuum on my toes!)

    Then a high does of cyclophosphamide put me in ICU for 4 days (no memory of any of that!) so that needs to be rethought. Will be seeing the consultant on Tuesday about what's next. In hospital, they didn't seen concerned, said there was lots of alternatives.  Just don't want to go through that again!! Very frightening for my family. 

    I'm sure I'll feel more upbeat when I've seen the consultant xxx

  • Oh no its all so scarey im sure they will do everything can can to help you going forward. 

    I bet it was awful and your worrying now. Just tell them how you feel. You they will reassure you and tweek everything for you. Xxx

  • Thanks Amanda. They did offer a change to talk to a nurse about what happened, which I will take up for sure xxx

  • Hiya Amanda Relaxed️ 

    Sleeping in this morning had me playing catch-up, but got there now.

    That's great news about your hair so celebrate the regrowing with the trip to the hairdresser's before Christmas, as you'll feel fab. Hold Glyn to his promise for Archie minding duties Thumbsup 

    Go on lovely, go to the bingo tonight and enjoy yourself as you could have a great time. Even better if you scoop a prize. When I used to go the other punters were so fixated on their cards they didn't look the side anyone else was on! God help you if you made a sound when the numbers were called - then they'd look, with daggers drawn.

    A️ll fine here sweetie, from a sunny/showery/windy but warm West Yorkshire.

    Love and cwtchs and good luck at the bingo Fingers crossedxxx

  • Afternoon Julie Blush 

    Aw sweetheart, you're really going through the mill with your treatment and like Amanda said, I too hope they find ways to tweak it so there'll be no more episodes to worry you all like last time. I pray your consultant will put in good measures on Tuesday.

    In the meantime, I hope your toe is recovering from its battle with Sharky. You could always ask your family to club together and get you the most unglamorous Christmas present of all time - a lightweight vac. Either that or a servant. I know which one I'd choose.

    Sending you warmest hugs and lots of love hon xxx

  • Thanks Gill. Yes, a lightweight vacuum is definitely an attractive Christmas present at the moment! 

    My toe is very bruised at the end but doesn't hurt unless I catch it in shoes. If it's still like that in 6 weeks, I'll know it was fractured! I've broken my toes many times before!! Think it's just badly bruised though and it's a very small bruise. I'm not sitting in a&e for 6 hours just for that though!!

    Hoping the consultant can get me back on track next week. They seemed positive about it all when I was in hospital.  Just want to know the plan now!!

    Hope you're ok xxx

  • Thanks Julie, we're ok Fingers crossed

    Just think how many nerves are in our extremities - that's why the pain's excruciating when even stubbing a toe or a tiny paper cut on a finger. Saying that I don't blame you at all for not going to A&E, as waiting for hours is a mega pain in the bum! Just keep checking it doesn't go a funny colour, seriously hon.

    Hold on to the positivity from the docs, and if the consultant is vague, demand answers as it's all about you in that moment. Stay strong my lovely xxx

  • And you deserve each day to be beautiful for you beautiful lady.