Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • That's almost a cert, Shims. He wasn't exactly Chatty Cathy before but did enjoy the odd natter.

    Once today's driver caught sight of his neck stoma he twigged and started directing any convo towards me in the back. The problem there was I could barely hear him, as only one ear works properly. OH has the hearing of a bat but couldn't respond - between us we make up 2 thirds of the 3 monkeys.

    If only OH would make a determined effort with Elvis things would improve for him. In the past I've shown him YouTube videos of laryngectomees 'speaking' via their electrolarynxes and he nodded his head a bit in approval. If I did that now it would probably draw tears forth. It's so frustrating for both of us but he knows what I'm like and I'll keep plugging away.

    I hope your nitty gritty files are getting fatter - you can ask me anything you like xxx

  • No Bejewelled G-string going on here! Whatchumean girl xxx. Joy

  • A few days in Scotland.

  • Look at the cloud Ukes. It looks like a Mutant Ninja Turtle covering his mouth with his hands.

    Pareidolia xxx

  • Had a tonsillectomy be 5 weeks tomox went for results today and sadly micro cancer cells in the neck 6 weeks of radiotherapy 5 days a week not the outcome I wanted xxx

  • Evening Tannis, and a warm welcome to the group.

    Oh dear, definitely not the outcome you needed and I'm sorry that's how things panned out.

    Do you know if the cancer has been caught early? Try not to stress about the RT too much hon, as many here have undergone that treatment, including my OH. He had the same amount of fractions you're down for and apart from a couple of minor burns on his neck, the worst side effect was chronic fatigue. That kicked in about 4 or 5 weeks into his treatment.

    I must express that was his experience and not how you may react.

    Sending you hugs xxx

  • Thank you I’m hoping no pain I had a tonsillectomy and never felt pain like it I was told today eating and drinking may be a problem x

  • Tannis, if eating, drinking or taking meds will be problematic, discuss with your team about getting a NG tube or a RIG or PEG.

    All these will help immensely and also stop you losing large amounts of weight, as it's essential you maintain that. Your nutritional team are the ones to best advise you on that if they haven't already done so xxx

  • A welcome from me too. Glad you have found us. 

    The forum is divided into different bits for different cancers, for carers and loved ones etc so you can find people with similar experiences to yourself.

    This bit is for folk who find themselves awake a silly o clock but there's often a few around in daylight too. You're very welcome to chat here where just about anything is discussed. We can be very light-hearted but also serious and informative if that is what you need. Our insight comes from our own cancer journeys and those of our loved ones.

    Tell us a bit about yourself.Do you have anyone around who is supporting you with practical stuff or as shoulder to lean on?

    Cheers