Awake and up all night

Had a bit of a drama! Collapsed on Tuesday evening with a sodium crash after a reaction the strong chemo had on Monday to release stem cells into my blood.

My son and his girlfriend found me at the top of the stairs and it took four paramedics to get me down the stairs.

I was sedated and in icu for 5 days and came home yesterday. I'm black ad blue from the feeding tubes and cannulas but am on the mend. Feeling a bit whoosy and tired and was very worrying for my family. Stem cell transplant on hold for a bit but they can do it in other ways apparently. 

Hospital were amazing and very caring.

Hope everyone is ok xxx

Oh goodness Julie how scary for you and all your family! Glad you’re out of hospital now but make sure you take it easy. Sending hugs

Linda xxx

Hi 

This is such a lovely group. Everyone are so kind. Im so glad i found you all. 

I contacted my specialist nurse as ive been feeling very low as my treatment has now finished but ive been experiencing some bad side effects over the last few weeks. I was wondering if it is normal to feel so scared and worried about the ct scan that im due to have next week and then the future. 

Any advice would be amazing please 

Xxx

Hi Amandas

Sorry to hear that you are feeling very low and that you have been  experiencing some bad side effects over the last few weeks.  Yes it is absolutely normal to feel so scared and worried about the upcoming ct scan and the future.

You might find it helpful to read a paper by Dr Peter Harvey called 'After the treatment finishes - than what' which perfectly sums up what the post-treatment world can be like.  Here's a link to that article: After the Treatment Finishes - Then What?.  I've read it and I found it very informative.

Best wishes

Daisy53

Sorry to hear about your unexpected hospital stay Julie. Take it easy. 

H 

Hi Amandas 

Its completely normal to worry about the Ct scan I think we can probably all empathise with you. My diagnosis was over three years ago and I started with 3 monthly Ct scans with a follow up appointment the next week. I’d no sooner get over that one and the next one would be looming. It is hard but you do adapt to it. Try and take one day at a time and be in the moment I found it helped. My appointments are now 6 monthly and I get stressed and anxious every time I have one but it’s not as bad as it used to be it’s become a way of life. It will get better!

Sending hugs

Linda xxx

Sorry to hear you're feeling low Amanda and about the side effects. It's not a song & dance this cancer lark is it? 

It's not unusual to worry about scans as they can answer the questions we probably worry about asking.

Have you had a chat with the helpline, it might be helpful for you.

H 

I had my blood test at 13:45 and the MRI department called at 15:15 with an appointment, so my bloods must be ok. 

H

Oh lordy Julie, what a thing to happen and I'm so sorry hon, but thank goodness you didn't end up at the bottom of the stairs! Even so, a shock for all of you and good to know you're on the mend.

I'll add to Linda's well wishes and advice to get plenty of rest hon, as much as you can. A hospital stay is always that bit easier when the nurses are kind.

Hugs and love sweetheart, and take good care xxx

I’m so sorry you have had this scare Julie.Take care,I hope you feel better soon.Love Jane xx