Awake and up all night

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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Not stupid. It is only when you get a break from getting yourselves here, there and everywhere that your body and soul  can go 'what?!?!'

    Cheers

  • Oh my oh my! So when are we coming round? I will bring my own rooibus tea!

    Cheers

  • Could you make it liquorice tea please xxx

  • Oooh you get a sticky Star for no eye leaks 

    Hurray! CartwheelCartwheelCartwheelCartwheel

    Err I think the dinosaur must have been especially for you.

    Cheers 

  • I'll give you the low down on Dino later.

    I get the feeling you like to get the nitty gritty on things Shims, so I'll go away for a bit and expand about what we've lost since OH's TL if you like. I don't mind spilling.

    Be back soon xxx

  • Definitely. You need so little of this loose leaf for a heady brew

    Ooh I once got hold of some, I think Polish, licorice chocolate OMG! Absolutely divine ... salty with little chunks of the black stuff but quality chocolate and superb taste experience. 

    Of course it then disappeared.

    Cheers

  • Sounds like a plan.

    Cheers 

  • So, what we've lost.

    It started initially in May '23 when OH had a TIA, and the car had to go soon after due to a nosedive in his cognition. Public transport became order of the day.

    He carried on WFH for a further year or so when cancer struck. That meant absolutely no car, so no day trips, definitely no holidays, no eating out (just snacks in hospital cafés, always hospitals) no more long walks because of poor mobility (he's unable to run) no more gardening or DIY due to damage to his accessory nerve after surgery, unable to bathe himself or wipe properly. That list goes on.

    Apart from the obvious, that OH can no longer speak, that alone impacts on most things and he's almost fully reliant on me to do that for him so he's lost a lot of independence through that.

    There's loads of other things but a biggie is the loss of spontaneity. It's like a mini military operation just to nip into town as there's a care routine to complete first, all of which can take up to an hour.

    So, no more slinging on a coat, hopping in the car and heading off into the sunset at will. Everything needs to be planned in advance if we want to go anywhere and as OH has lost the will, we don't. I don't relish having to take his gear either and changing his filter on the street, if he has a mucous excretion, is darn fiddly.

    Now don't you dare express pity as I'm not seeking that, but now you've got a little insight into the life/existence of a larynjectomee. 

    They should provide a comprehensive booklet for perusal along with the prognosis xxx

  • Doh! First nodded off then couldn't get the page refreshed to show your post!

    Thanks, this is a bit of an insight. It sounds like a very insular existence for someone, well at least you, that isn't.

    I am not going to say too much at this point as it may sound patronising etc.

    Does OH ever articulate his feelings other than eye leaks? Do you have an emotional valve other.than here?

    If you've nodded off, taken up crochet  or are raiding the fridge, catch up later

    Cheers 

  • Lol. No, watching the Beguiled starring Clint Eastwood.

    If I push, OH will open up but he's not really that kind of guy. I mean, I'm very forthcoming as I don't really care what others think, but thanks to his toxic mother, OH has a very 'second best' personality. I often think he reckons he's not good enough, if you get my drift xxx