Awake and up all night

Hi Gunner

It's not surprising you're having disturbed sleep with everything going on at the moment. Relax when you can, even if you're not sleeping. 

H 

ShimmeringUnicorn said:

About to slap a much needed colour on hair.

Ooh, what colour? 

Before chemo I was definitely grey but it's come back blonde which I was as a youngster. 

H 

It's a bit finer though

H

Definitely a bonus though H, as gentlemen prefer you so you'll have more fun! xxx

Hi Gunner. That first period of diagnosis is like crashing into a brick wall. Everything seems surreal and turned upside down.I got very down in the early stages, but people like Gill, Soc, Brian, Sbird, Dingg, Julie, Daisy Kez and countless others made me see it was possible to live with this weight and still laugh. Me and OH found meditation a good way of relaxing. In fact we often fell asleep before the end of the meditation. We found Ravi Shanka on YouTube with all sorts and lengths of meditation. I would say try not to beat yourself up. You are going through a process of assimilation and acceptance.Its a bumpy ride but you will find strength. Be kind to yourself and let those emotions spill out. This from the prince of eye leaks. All my love Uki.

I know just what you're saying ... it's just another battle you could do without.

Sound good news for the Blood tests.

Evening Tinks, just in case Uki's settled down for the night.

It'd be an idea for the hospitals to supply us with armour and bazookas for the battles they know will be coming, but only meds are on offer.

Oh well, OH has got his own personal drill sergeant at his side to keep him in order. I've certainly got the gob for yelling orders.

How are you doing today my lovely? Devil's tic tacs still keeping you awake hon? xxx

Hello Sbird, unfortunately the steroids have been for many, many months and my body has not tolerated them very well.  I became very ill a year ago and these were the treatment but the dose has been tapered down during that time and the plan is to switch me to a different and more gentler steroid ... and hopefully one that let's me sleep.  In the first few months after starting them I wasn't getting much sleep at all during the night. I usually get a few hours these days but the other night was particularly bad.

Hope you are OK?

Hiya, I'm so used to being up late, I forget some people will be settled down with zzzzzz 

Last night I couldn't keep awake and surprisingly slept for over 7 hours ... amazing!  Still tired though!  How's your sleep  these days?

Your not wrong there, I'm not convinced that the health service is very suitable for ill people.  I end up giving up at times until I can gather the energy (think they call it advocating but feels more like a battle when you are exhausted).   Although I have come across some great ones but you never know who you're gonna get.

xxx

That's funny as I've said the same to OH many times - that some of his docs seem to be out to make him worse, giving him the wrong meds and stuff. Maybe I'm just a distrustful type - they must know what they're doing, mostly.

I've got used to those who tend to stay up late but a couple are MIA tonight. They've probably decided to be sensible and join the rest of the world in normal behaviour.

Well I hope you're on the correct dosage of steroids now hon, and if you got a humongous 7 hours in last night they must be working. I hope so and you'll probably feel so much better with extra sleep. Don't let me keep you awake if you're tired now Tinks, cos there's always tomorrow.

One thing though, you said your physio had made things worse - are you still seeing them for more of the same or given up with it? OH has but I think they knew he'd had enough xxx