Awake and up all night

I can’t say thankyou to everyone loud enough, nope did not wanna be here but gonna make the best of it, again sending love and best to everyone because you really deserve it.

Hi Gunner

Yes lad, I reckon we'd all like to be somewhere else, Bahamas, anyone, but it's a smashing group and any topic is free choice.

Good luck for today hon, and keep smiling if you can.

Hugs and love xxx

I remember when.!!

A very warm welcome to the group gunner.it is lovely to have someone new and thank you for the lovely post. As Gill and everyone has said just post here anytime day or night. Always someone around. Sending big hugs and love.xx 

Hello Gunner66 

A warm welcome to the group from me - sorry it's late but I am on the last day of my hollybobs in Sussex - back to Lancashire and grim reality tomorrow.

I am so sorry to read of your diagnosis - you win at PSA "top trumps" as the highest mine has been is 182 (click on my user name or avatar for the full 4.5 year story - but make a brew first!),  As for the Gleason Score - yes I am a 9 too (the high 9 - 5+4 and not 4+5 - it makes a difference!).

This group of people are amazing - you can open up here without any fear, and yes there's support 24/7 I love 'em to bits and they do all behave (most of the time ).

The online Community is divided into cancer specific groups and please do join us on the Prostate Group too - here's the link you need:

Prostate Cancer Group

Once you click on the link I have provided and the page opens up, click on "join" on the black banner at the bottom of the page. Once you have joined the group you can introduce yourself in the "New Here - Say Hello" section. You will get plenty of replies and answers to any questions you have.

If as I suspect, going off your user name you are ex forces we have quite a few ex forces members on the group.

If you need any help in navigating the community - please do get back to me. I look forward to "meeting" you again in "our" little (well it's not so little these days) group.

Best wishes- Brian.

Hello and welcome to @Gunner

Strap in and buckle up ... you may decide you bring the sanity   Box of frogs?

 What?Where?

Cheers

Welcome Gunner!

You found the right place!

Lots of support and chat about anything really!! Sometimes cancer, lots of other times it's things to take your mind off it and make you smile  Julie xxx

Well am with pal, still in hospital. Again was all set to go but ... kidney pain which became severe so further investigations. You know how it goes, veins refusing to give up the blood they need for tests.

Got him a sheet etc so can lie down. What happens to people with no advocate???

Young doctors tried for ever to get more blood, veins not playing. His bro n partner haven't visited today and are going back home, stuff to do!!! Will come back if gets out.

Stressy has arrived back from stuff he had to do, only been away for two hours and Scooterless saying 'I staying till Monday, they are going to do bla, bla ....'

Aaaaaaargh! When did that conversation happen? The only reason we are not leaving him alone is the communication difficulties. So unless doc told him while sitting on floor trying to get blood???

Went to consult nurses who looked on computer and were surprised to see a plan that they hadn't been told about either! Getting a kidney drain! They have asked docs to come chat. 

Really must eat. Just sorted hot sarnie so back to ward.

Cheers

Afternoon Shimmer  

Don't reply but get that hot sarnie down. You can always give us the lowdown on the Late Late Show - I look forward to that.

Now look, did Bro and partner have a cast iron reason for not visiting as it's only a minute and a half away as the crow ‍flies? Bad form if they didn't.

Hey, I always get a pang for those I've seen advocateless when in A&E and other departments, and usually make it my business to chat with them. Now they might have thought I was being downright nosy but I swear I'm not and some good convos have been struck up. We've met some fab folks that way and I'm glad pal has you to do the honours.

Maybe laters Shims and enjoy the chow. Hugs hon xxx

Afternoon all. Just about caught up with the new posts since last night. Outside loos: Wife would not show me theirs when we were courting in the early 1970s. I later found out that it was a plank with a hole and a standard bucket beneath. No water there or in the kitchen, only one tap in a room which had had an enamel cast iron bath added. In Southsea where I lived for a year (1961,  Eastfield Road) the loo was outside but at least it was a proper flushing wc. 

PSA results: I'm a bladder cancer bod on a palliative, symptom driven treatment regime with a Foley urethral catheter which is changed every 8 weeks. I've had this arrangement since late 2018. In dwelling catheters make the PSA reading very unreliable. Mine is always very high, 50-100, sometimes even higher. So far, medics have not seen the need to investigate my prostate further. Perhaps occasional CT scans with contrast for the bladder gives them a steer.

Welcome Gunner66. This forum plus one for your specific cancer should help you keep somewhere near sanity most of the time. If you are, as Brian (Millibob) wondered, ex-service,  I'm the son of now late RAF parentage. Mum was from a family with several members who served with the Royal Scots regiment.   Ray x