Awake and up all night

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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

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  • Part 2 Scooterless's brother and partner arrived at his house this morning and would wait there until he was being discharged. Then they would go up in taxi to collect him.

    Well we all know how hospital and times work! So around 4pm still waiting for doctor, Stressy rang the bro and asked if they would pop up to give him a break (been there 7 hours). No! They couldn't as had no money for taxi. Rage

    Err ... if you tried really hard you could drag out the walk to hospital for a whole ten minutes! Scooterless's very short street ends on the main road the hospital sits on. You couldn't get lost even if you'd never been before. They had!

    I left Stressy's house unlocked and walked to hospital. One and half minutes less walk than theirs would have been!

    End of part 2

  • Err I will bear your pugilist talents in mind. Thanks Slight smile

  • Omg shimmer, what is the matter with these guys?

    You know, I can relate with your frustrations as it seems they enjoy being babied, just like OH. I've made a rod for my own back by becoming a mummy figure. Nothing like his real dragon mother, thank god!

    What's your excuse hon, or is it your caring nature you're unable to contain? Volunteers are always in demand at animal rescues. I might start checking some out myself xxx

  • Part 3.on arrival at hospital news was doc due anytime and Scooterless dressed and waiting to go.. Stressy would hang on. Then of course stressed and went outside for a bit.

    I was then very disgruntled Rage that the urology ward had not made Scooterless aware of the predictable loss of bladder control or provided products to manage it! They came to do another scan and didn't remark on his sodden clothes! Hushed I sorted him some products. Insufficient!

    Doctor eventually appeared, said keeping him another night and should never have been told going home! 4-5cm tumour, may also be in muscle wall, further radical surgery too risky, wait for lab results to decide treatment. Tumour had hidden kidney drainage tube and kidney function had decreased over the day so hopefully overnight it will pick up again.

    Scooterless won't have heard most of the chat and pointless telling him of 'maybe's' at this stage.

    He has a brother who recently passed from cancer so he has already leapt to worse case scenario. Apart from the brother now here he is estranged from rest of his family, hence I do a lot of sorting and organising. 

    Oh did I mention the brother and partner have high dependency on alcohol?

    We bank transferred them enough cash to get taxi to hospital tonight.

    Stressy will go back up at 9 am to 'interpret'in morn.

    Stressy is coping remarkably well. This may not last.

    The end .. so far.

  • Well some of part 3 made me laugh but not the bits about the tumour and other unwanted stuff, poor guy.

    So, Scooterless is in dock overnight then? How did he take it or did he settle, and will you be involved with his discharge?

    I'm actually looking forward to the next part to know if the alkis get up to any antics! It's pretty awful, me hanging on to see if others' lives are more crummy than mine but your narrative does make for a fun read, girly.

    I'll excuse myself on that basis alone xxx

  • You know how it goes... you have to laugh or you'd be in a corner rocking or removing someone's eyes with a rusty spoon. Ahem 

    The bro and partner are good people underneath but sadly have a verbally combative shouty relationship which does my head in and Scooterless's hearing aids. They will happily stay to help him out but he may need respite from their care Grin

  • I am curious to know how your OH communicates now? 

    Obviously this is a life changing situation for both of you.

    Cheers 

  • DOH; This is obviously to you not myself,  I am curious to know how your OH communicates now? 

    Obviously this is a life changing situation for both of you.

    Cheers 

  • JoyJoy magic!

    You're bang on about trying to laugh our way through all this, otherwise the men in white coats would be braying on the door.

    You've cheered me up as I've got all kinds of images in my mind about your pals. I've even put faces to them.

    I'll try to maintain my better mood for later on today but the whole thing will crumble if my nemesis calls round - the Gorgon MiL. She always sets my right hand twitching.

    Cheers Shimmer, for your overnight memoirs xxx

  • Ah, the delay with using my phone.

    Well, I really don't think OH was properly told by his ENT team just how badly losing a vital part of him would affect the rest of his life. They did show us a video, before his op, of laryngectomees post surgery but it was generally hearts and flowers and OH wasn't taking much in, as by that time he'd been in hospital for a long time and was already institutionalised.

    I'll do a you and part 2 coming up...