Awake and up all night

Thanks Brian

Kind of you, yes its helped just to be here with others going through similar things.

Just discovered that the combination of health issues that caused my husbands death were so rare together as to make the odds of it happening virtually zero according to what l looked up.

But l guess it isn't uncommon for genetic and other issues to cause issues for many people but concerning of course, different diseases. 

You hear of people being the first to be discovered to have a syndrome l guess but it is surprising to know how rare the combo of Gilbert's syndrome non cirrotic portal hypertension and varices not the cancer making it inoperable plus his genetic heart issue that had he made it we were looking at open heart surgery for him next year as his genetic heart condition meant the simple key hole surgery wasn't suitable. 

Very complex issues. That's why this blog is valuable as in all the medical jargon its important to be able to chat to ordinary people. 

Thanks Brian x

Thanks Gill

Thanks for the kind message, strangely l set up a charity whilst the funding lasted a few years back to provide cheap accessible counselling in Wales as the waiting list is a year here. We had a qualified counsellor. Funding disappeared but at the time sessions were under 20 pounds and concessions.

Hope your hubby can get something soon. In the meantime he has the best wing man going in you being there xx

I am on auto pilot, and l think many folk on here probably find that don't you think Gill, when we had nurses coming in it can be overwhelming.  I think if others need nurses coming in l think you'd settle into a routine getting used to it in time.

Thanks again Gill, hmm no nick name as you are like Judy Dench as M only you've H and you are as insightful as her as M but the Macmillan version but then perhaps Ukiboy could be Daniel Craig and Pippin as, well the Bond cat !! In his case not we meet again Mr Bond but in Pippins case we'll eat again  

As usual l couldn't find the recent messages but just saying hi to all on the night shift....l have managed again to be still awake.

Going to try and go to bed. Still haven't given up on herbal tea.

Found a menopause tea which helps a little bit but had to explain to anyone making tea in my kitchen that if you drink it by accident it wont give you the menopause...

I'm not cured by it but worth drinking. The men's version was absent but there are vitality and other types of tea that could aid sleep like calm versions x

Hi to Ray as haven't seen his messages recently and all the gang x

Morning Dingg bat

Ssshh, I'll reply quietly as I don't want to wake you, but I woke earlier after getting in an hour or two, hence replying now.

Ah, the counselling - it's a pity there isn't a scheme like the one you ran as it's likely OH could have a long-ish wait for his and although it's very kind of you to say so, my style of wingmanship has probably added to his trauma! It's quite harsh, at times, so an extra session could be on the cards to get him over that too. We had district nurses visiting every Sunday for months. I never really got used to it and did switch on autopilot till they'd gone, not because I was ungrateful but their presence made me anxious. I guess it was because they brought the hospital element into our home and another reminder of OH's illness. 

Dingg, you're as bad as I am for googling things but it's a way to cut through some of the Doc's jargon and know what they're on about. You could start your own blog on here as writing things down is cathartic. I'd certainly read yours, as I have others' blogs, and they help just by knowing we're not alone on our own rocky journeys.

I've now got visions of UkiBlofeld, looking mysterious and with Pippin on his knee, stroking him. Pip's almost the right colour but I don't think he's got blue eyes. Talking of cats, your mention of Dame Judi reminded me that I used to fancy her husband Michael Williams, years ago, and he looked a bit like a cat. Not my type at all so I don't know what I was thinking of.

That's enough rambling but many thanks for your post Dinggy, and as always, take good care and lots of love xxx

Morning all 

It's warm and sticky here again. Alan's just gone out to wash the motorhome, no hosepipe ban here but he's just going to use a bucket anyway.

 Dingg good to hear from you, I hope you're looking after yourself. 

H

Morning Helen  

I didn't bother going back to sleep after replying to Dingg so did some chores, somewhat inspired by her tenacity - she's incredible.

It would take something else to get me washing a motorhome down so good luck with that, Alan  

Warm, sticky but nicely dull here H xxx

The name's Uki, Ukiboy and I'll have a cuppa Yorkshire tea, shaken not stirred.

Ukiboy said:

I'll have a cuppa Yorkshire tea, shaken not stirred.

I'll have one too please.

H

 xxx 

Would you like a slice of lemon with that Sir?