Awake and up all night

Moderator - Macmillan Community over 1 year ago

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7.

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

Have trouble sleeping and looking for somewhere to talk
Would like some company and support each other during the night
Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

Kezdc16ad 3 months ago in reply to JamesH

Good Morning.

That’s fantastic news. Congratulations.

Millibob 3 months ago in reply to JamesH

Hello James JamesH

Brilliant news and thank you for posting. It's always good to share good news.

I wish you well and stay cancer free.

Best wishes - Brian.

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Ukiboy 3 months ago in reply to Gill H

Bit difficult at the moment. I think all this has hit OH more mentally plus reducing the opioid medication.She is talking continuously without a break and asks me things when I'm in a different part of the house and can't hear, but gets upset with me when I don't reply. She's also very anxious about everything. I think it's a side effect of the meds. I totally understand, but it is really hard at the moment. Sorry,bI feels like I sound selfish, considering she's the one going through all this. I try to remain patient and supportive and I love her so much. Again sorry for moaning.

Soc 3 months ago

Hi ukiboy don't apologise you are no moaning. Sounds like she is going through a difficult time with the change in meds. Might be worth having a word with your gp. Sending all my love.xxx

Ukiboy 3 months ago in reply to Soc

Thanks Soc. Your support means alot.

Millibob 3 months ago in reply to Ukiboy

Hello Ukiboy

You are not moaning - you are caring for someone you love and as blokes, most of us are not born carers. It's hard, medication has it's side effects and sometimes the one you love just isn't "right" - It's not you it's not her it's the medication.

Try and take a break, yes unwind here (not at home0 - get out for a walk if you can, even give our helpline a call (bottom of my post), watch the tellybox or listen to some music.

Don't beat yourself up - you are doing everything right - if she isn't right tomorrow then give your GP a call - could be a medication clash or just a simple infection.

Kind regards - Brian.

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Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Strength, Courage, Faith, Hope, Defiance, VICTORY.

I am a Macmillan volunteer.

Soc 3 months ago

Hi uki you are welcome. That's what we are her for support and understanding. Your OH might be having a bad day and just needs someone to have a go at and unfortunately you are the nearest. Try not to take it personally try to reassure her that things are okay.

Gill H 3 months ago in reply to Ukiboy

Hi Uki.

Aw your poor OH, and yourself. Sonia and Brian are right and if your OH is still suffering tomorrow then a call to your GP might be best. If she's having a comedown from the opioids it would explain how anxious she is too.

You don't moan, sweetheart. You're doing your level best to help your loved one through all this and it'll take its toll on you. A cuppa and maybe a good sit down for 10 minutes could help.

All our love to you both xxx

Soc 3 months ago in reply to Ukiboy

Remember when I came over all strange 2 days ago and you helped me. I think it was at night. I suddenly stopped taking strong painkillers as the surgery took away my pain. I had been taking them for6 months and shouldn't have stopped them suddenly.

Sbird 3 months ago in reply to JamesH

JamesH said:
I had some fantastic news yesterday. I got the results of my post treatment scan. It came back all clear with no sign of cancer. If I can get through 2 years without it returning then I will be cancer free.

Great news