Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hello, and another warm welcome to the group. I am so sorry to hear about your brother. Sending my deepest condolences to you. 
    This is a great group with amazing people. 
    Sending hugs. xx

  • Hi Gill hope you are coping with this heat. Ive not been feeling very good since having chemo on tuesday. I had one night of insomnia and slept well last 2 nights. Soooo hot here in catdiff and ive been having chemo cheeks flush again.

    Laying down fan on and flannel on face. Nothing else i can do. 

    Roll on the thunderstorms i say. 

    Big gentle cwtches sent to you and your OH. 

    Amanda xxxx

  • Chemo does make you feel bad 3 days after. It's horrible, just rest and stay hydrated.  I've just finished 4 months chemo. I had it on a Wednesday and was flat out on the Saturday/Sunday.  It will pass, sadly probably just in time for the next one. I also had steroid face flushing. Maybe a wet flannel might help?

    Hang on in there. You've got this! xx 

  • Hiya Amanda Wave 

    Aw sorry you're feeling a bit drained hon, and the stifling weather obviously won't help. You're doing right by trying to cool down though and our fan's working overtime as well. Sweetheart, according to the weather reports there's no sign of thunderstorms yet, but you could get lucky as the west tends to get more of the wet stuff than us lot further inland. Fingers crossed though. Fingers crossed

    I ventured into the garden much earlier to drag out large areas of weeds. They'd tangled round shrubs and a small tree and obliterated our small collection of pot geese and frogs - they're back out in the open now and looking pleased.

    Gardening isn't really my thing and when the sun stops doing its thing, the weeds will do a bunk for a while. Hallelujah!

    Take care hon, love and cwtchs to you all xxx

  • I was considering giving my large Japanese anemone plant some water as it has begun to droop in the heat. Then I read that our water supplier has declared a hosepipe ban, starting on Saturday. Oddly, AI says that blue badge holders are generally exempt from the ban. That's a new one on me. Does this mean that I'll be hijacked on my mobility scooter and forced to hold someone's hosepipe?? 

    Best wishes to Sonia if she is looking in and everyone whose struggle with symptoms or treatment is made more draining by the unrelenting heat.

    I thought about sleeping in a cold bath last night but the water out of the cold tap was very warm as all but the kitchen tap are fed from the tank in the loft. I need a galvanised tub to fill from the cold mains water tap in the kitchen but suspect that once in the thing I'd be unable to climb out of it.  xxx

  • Afternoon Ray Smile 

    I was only saying to OH this morning that hosepipe bans would be enforced soon. Hey presto! They don't affect us as we don't have one but you could check up if you're exempt - for a small fee you could visit households on your scooter and brandish your badge. Hey presto again - brass in pocket. You'd have to be an entrepreneur (conman) to succeed in such a venture though. I'm too lazy to pull off stunts like that, so they remain in my fuddled head.

    About the bath thing, Ray. There was an ad on telly about a chair that sits in it and rises up and down. I'm going to look into it as it would be ideal for OH and might work with tin baths too. You'd need to make space in your kitchen to accommodate the extra equipment, but the bath could double up as a coffee table when not in use. Simply upend it and throw a nice, floral tablecloth over - hey presto! A new and useful addition to your living room at minimal cost. 

    A tad too many 'hey prestos' but sweltering heat does funny things to me.

    Take it easy my lovely, and Sonia, we love you hon xxx

  • Hi Fiona

    I'm so sorry to hear about your brother. Do you have other family around? 

    We all grieve differently and in our own way, no way is right or wrong. Just do what you need to do.

    As Gill said, try and think of the many happy years you spent together.

    Do feel free to vent on here, there's usually someone around to "chat" with.

    H 

  • Afternoon all

    It's scorchio isn't it. We're sitting out in the in-laws' garden in the shade of a tree and it's certainly cooler than indoors. 

    H

  • Afternoon Helen Blush 

    Yes love, definitely el scorchio but glad you've found a cooler spot. I'm still trying to find one - el searchio. 

    Time to get the tea on here but I think my back's hotter than the hob! Cripes xxx

  • Hi Julie2468

    It is horrendous isnt it. My chemo is on a tuesday then i seen to get this chemo flush which lasts for 2 to 3 days. But like you say cos the steriods and antisickness stops i feel terribly fatigued on the saturday and sunday. I have one more now to go thank god and ive finished. Do you mind me asking what chemo you had mines cisplatin 70% and 80% etoposide. Its been hard but somehow gods given me the courage to deal with it. 

    Im sat with wet towel around my neck a fan on and been spritzing my face. 

    Hope you ate doing ok now. Which part of the country are you in im from Cardiff. And its been 30c today. Roll on the winter i say lol. 

    Take care Amanda xxx