Awake and up all night

What a lovely photo. Beautiful weather too. xx

Hello. 
I am so glad to hear that they got the cannula in, and that everything went well. And to hear that you are feeling well is great. Celebrate the little wins. xx

Hello. 
It’s lovely to hear from you. I was also wondering how you were getting on. 
That is awful what happened, and what you have been through. Sending you huge hugs, and strength. xx

Hi Brian

We have most of the equipment you mention already, they were pretty quick bringing it out when Dad was first diagnosed. 
We are still in the hospice as Dad is now worse than ever, very confused, agitated, aggressive and refusing medication etc etc. Hospice say he can’t stay here so he is due to be discharged on Tuesday to home, he is entitled to funding through CHC so that isn’t a problem. What I’m having a problem understanding is the fact that Dad clearly needs medical care, he is very ill yet there seems to be 2 options open to us being either he comes home and we muddle through or he goes into an inadequate nursing home. I can’t believe this is the norm. He is terminally ill, we don’t know how long he has and they are in effect saying take him home we’ll give you 4 carers a day, 3 nightly visits and access to district nurses, when needed and you’re on your own! 
I thought a hospice was somewhere terminally ill people could go until they die, not short term visit for 2 weeks and that’s it, sorry no further help here. 
I’m actually flabbergasted that ill people are treated this way.

If you are aware of any other options open to please let me know.

Many thanks

Tracey. 

i am keeping my fingers crossed for you amandas. sending big hugs your way.xxx

so sorry to hear this helpingdad i think it is apalling the way they are treating your dad. i am sorry i cant think of any other options you have got. just hoping they will change their mind and let him stay in the hospice.

well done allmum. one step closer.xxx

Hello Tracy (HelpingDad) 

I am so sorry to read your post but sadly that's the way of the world these days. My local hospice has 12 beds but the maximum time you get is usually 2 weeks as an in patient before you are farmed out to "care in the Community". It's wrong.

So my understanding locally (as I have been through this) end of life care here is led by the GP in conjunction with the District Nurse Team and Adult Social Services. They also use the Palliative Care team from our local Hospice.

I hold my hand up here and will say the above is from personal experience. My resource bank tells me I am right - I think you will get the same answer from the Support Line but give them a call - 0808 808 00 00 (8am to 8pm 7 days a week).

Other resources I have but never used myself are:

* Hospice UK - Information regarding end of life care including a directory of hospice services 020 7520 8200 and www.hospiceuk.org

* Marie Curie - Help and Support with terminal illness 0800 090 2309 (8-6 Monday to Friday and 11-5 Saturday and www.mariecurie.org.uk

We have another group on the Community you can join and you may get some practical answers from people going through the same as you and the link you need is here:

 Supporting someone with incurable cancer forum 

If you join this group and post your questions you may well get some useful replies.

I hope the above helps and you get sorted. Do keep in touch. We are all here for you.

Kind regards - Brian.

Thanks Gill

Sorry to hear your hubby is having ups and downs, Thanks again for the confidence boost too.

I try my best to get the best for hubby but he's had the cards fall not that well lately but he does now have a stent in place and is very slowly eating.

Sending hugs Thanks for the Welsh hug xx

I will. It's my birthday today too. 73 but 16 in my head.