Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Some of these drugs have very similar names. Could have been advising Amanda's to take something completely different. Or maybe OH has been taking something different.

  • It wasn't a biggie hon, but OH was on it in the early months. I discovered that PPIs interacted with another of his meds and caused a series of seizures - scary. I had a chat with his oncologist and he endorsed my decision to taper him off Lansoprazole. No issues since, but he was on one with a similar name and they had side effects too.

    Everyone's different with reactions to meds, but after our experience I check all OH's carefully.

    Warm again today so I hope our Pippin's enjoying it, sweet boy xxx

  • OH is not on them now and luckily didn't have any side effects. There was one point when it was hard to keep up with all the different meds she was talking.

  • It's a bit of a challenge keeping up with meds to be honest, Uki. Besides any dodgy side effects I've to make sure OH takes them on time and we don't run out.

    Left to his own devices isn't an option any more - years ago he was only on 2 meds for blood pressure but often ended up dropping them on the floor and they'd disappear into unreachable places - I couldn't trust him then so certainly can't now. I imagine your OH is much more on the ball.

    It's a pain though, on top of the other stuff. How are you both doing sweetheart? xxx

  • OH had bloods taken today at home. They found a vein. Hooray. Looked up whether I was odd liking grey days and rain Evidently, I 'm a pluviophile and is quite common. Pipsqueak, Pudding, Princyboy gets a bit skittish when it's windy though lm Nurse who took bloods was as bonkers as we are and was telling us about her holidays on the quiet side of Ibiza. Evidently very zen and hippy like.

  • Aw Uki, it's great your OH could have the bloods done at home - one less hospital or GP visit Thumbsup

    I like the sound of your nurse and her Zen leaning, maybe we should all try a bit of that - peace brother. Precious Prince Pippin's already got that number.

    I'm off to look up pluviophile now and good to know we're not on our own Ukes. But, I hope Dingg and hubby are ok as she didn't post yesterday. Fingers crossed for them hon xxx

  • Yes. I was worried about that too.

  • I too have trouble either getting to sleep or waking up around 3.00am. I have recently had lung cancer diagnosis and am waiting hopefully for surgery in the next 4-6 weeks. I'm not too bad during the day but bed time, when all is quiet, my brain goes into overdrive.

  • Good afternoon Jen, and a warm welcome to our group Blush 

    Sorry to hear of your diagnosis sweetheart, but honestly, the weeks leading up to your surgery will fly by. I hope you have a good team at your hospital to guide you through all the ins and outs.

    Waking up around 3am is a common theme on here, and I swear I've got an inner alarm clock that goes off shortly before that hour. I was busy watching a football match from 2000 at that time this morning.

    Jen, have you found anything that works to get yourself back off hon? All suggestions will go down well.

    Sending you warmest hugs my lovely xxx