Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi again Amanda Wave 

    Sorry for the late reply hon, but the day, and previous late night, caught up with me and I dozed off for a while this aft. I've been busy catching up ever since!

    You asked earlier about my OH's diagnosis - c T4a  N1MO SCC - roughly translates to a flipping large tumour and lots of cancery bits surrounding the big boy. Right now he's NED but to get that status a total laryngectomy was necessary, and lots of lymph nodes were evicted along with his voice box and other throaty things. Being flippant about it keeps me almost sane.

    Anyway hon, as others have already said, there's no need to get any feelings of loneliness as this group is packed with caring, supportive and humourous folk - and we also get regular photos of lovely furries and holiday snaps. It's fab!

    I enjoyed your insightful post about fatigue and it's gone a long way to explain how OH felt after his RT - it was hard to tell it apart from his laid-back and lazy natural bent.

    All the very best for your treatment my lovely xxx

  • Hi, I took lay down earlier and actually dozed off. That probably means I will be awake for a good while now.

    A pal is ill and I was there taking dog out and ministering but... TMI ... after cleaning up a leakage I decided it was best for me to leave.

    I will back ensuring they contact GP first thing. They have autism and only see one doctor who is brilliant with him but this really needs sorting with who ever is available.

    How is everyone else doing?

    • Cheers
  • Evening Shimmer

    Oh dear, that sounds a bit iffy but you really are such a kind and caring friend to your pals. Was, or is, that your profession hon, or is it because they've only got you to lean on? Yep, definitely get his GP involved.

    My afternoon doze could also keep me awake tonight, but saying that I do feel more tired than usual as it's still early. I'll see how things go.

    What size dog is he? My eldest grandson has had a lifetime terror of our canine friends but has eased into accepting cats, so it's a start. Big hugs sweetheart xxx

  • Hi, the dog is a beautiful big Golden Retriever/Labrador. It is fab that there is movement towards cats with your grandson. Are dogs an issue when out and about?

    Yes, I am pal's only support. They said they were  ill from stress re other pal's potential cancer diagnosis and visited GP ... blisters base of spine, diabetes numbers high, infection. Got antibiotics.

    They are in so much pain can't sit or move well but

    TMI ... tonight leaked very smelly stuff.

    This is not just diarrhea...

    On Wednesday I was looking around our gathering of pals. It was our pal with Parkinson's birthday.I decided we really need to find some robust, healthy, fit friends Joy as who among us could walk Stressy's dog for them?

    One pal has heart, breathing and mobility issues (the one facing cancer investigation), one is frail with diminished sight and has had second brain op, one is tall and uses 5ft crutch, one with autism would need lot of support and work first and of course the birthday boy has Parkinson's.

    So me with broken ankle and elbow was best option!!! 

    Cheers Slight smile

  • Good lord Shimmer, so many health issues amongst the group. Are they in accommodation for those with mental health problems too? You must have a really good constitution to deal with the bodily fluids stuff and especially if they aren't related to your good self. That's something I've discovered since OH got ill - that the gunky stuff and accompanying odours are a thing of the past.

    But I digress. Yes, when he was younger my grandson would run from even the sight of a dog, and we had to keep a really tight grip on him, particularly near roads but thankfully he's getting a grip on it. It's a case of he's wired differently, but with lots of patience and foresight we keep him as safe as possible.

    By the way, Labs are one of our favourite breeds and absolutely adorable. We'd love to be able to have any dog, particularly a rescue, but it's not to be just yet. When out shopping I home in on dogs being walked, and after checking first with their humans, proceed to make a massive fuss. I've not been bitten up to press!

    It's looking like it's only us two playing night owls so far hon xxx

  • Well Shimmer, I was watching Now 70s and started to drift, so I am going to get myself off as my head's full of fog, so much so that I've realised it was your post, and not Amanda's, that put me straight on the issues of fatigue.

    I hope you can get some sleep too lovey, and wishing you well for recovery from your injuries. Night night sweetheart and sending hugs xxx

  • Are my pals in accomodation for mental health issues? Not yet Grin

    Before the golden,  Stressy had a rescued Staffy that could be triggered by aggression from those around it but he was gorgeous ... apart from eating anything he came across in street. I will come back to that.

    Opening the garage style door of the yard to take him out one day, I hadn't yet clipped on his lead. The lane was mostly unused as it was the fence of the school field opposite the back of houses this side.

    Very unusually, a woman and a girl of about 3 had just walked past. The woman started to scream and kept screaming...hands to her face, ignoring the child.

    The dog of course went to investigate ... I was terrified the dog might react and was saying please stop shouting. The dog put his front paws up on the child (not aggressively) before I got there and removed him.

    I went back out and the woman was still hyper, the child just looked a bit dumbfounded rather than bothered by dog. I checked she was fine and the woman was saying 'she needs a doctor!'

    The child didn't even have a red mark from paws never mind broken skin so I said she is fine. I said to the child, 'I bet you have  some magic cream in your house.' and she nodded and beamed a smile.

    They didn't actually return to further 'Complain' which I feared.

    Back to the dog, walking past another back lanes gates, one set was open with someone moving in or out and a heap of bits on the ground. Watching those bits like a hawk I didn't notice dog had already found a treasure on the grass.

    It looked like a little umbrella handle sticking out of his mouth and curling back over his lip. The traditional Staffy firm grip on it ... what ?

    Oh yes! It was an ... adult entertainment toy and he had managed to activate it and this was the best toy ever and he wasn't going to give it up!!! JoyJoyJoy

    Cheers 

  • I am still getting to grips with how long it takes to post here and the delays. 

    Hope you sleep or at least rest.

    Actually ankle playing up as it had bit of trauma today but I will live. Take care

    Nyt,

  • Morning Gill

    When you said “lovely furries” here’s my not too furry boy yesterday relaxing after walking me back from the pub!

    While he relaxed I had to make Sunday tea for the 3 of us!! Joy.

    He’s never “off duty” always looking or listening just in case the fridge opens!!

    (Greyhounds sleep with their eyes open!).

    Kind regards - Brian.

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  • Morning Brian Blush 

    I've not long woken up so guess I needed the extra hour! Another wonderful pic of Ryder but I never knew that about greyhounds - unless you're having us on?

    I'd have loved to chat longer with Shimmer, but sleep was the conqueror so I read her highly amusing story about the staffy this morning - we've got another comedian on the board! 

    Ryder sent me a PM earlier and told me he's keeping you in check again - he wants 2 bags of pork scratchings and be quick about it, or else.

    Have a smashing day my friend xxx