Awake and up all night

Hello ShimmeringUnicorn and welcome back to the forum. What happened to the Fruity Loop section? I've been with the Bladder Cancer group for about 2.5 years and this section for about a year but not heard of your former night owl forum.

I think your pal is waiting for a TURBT (trans urethral resection of bladder tumour), a procedure usually done under a general anaesthetic, requiring a day or so in hospital. It does not usually require any external incisions and is a pretty routine first procedure in the treatment path. I've had two of them back in 2018. I hope your concerns prove to be something benign, perhaps an infection, but either way there are many treatment options after a confirmed diagnosis. Best wishes on that one.

I hope your broken toe etc has not immobilised you too much and that any pain can be suppressed with over the counter painkillers.  Ray xx   

Good evening/morning Soc. I did not want  to break in to your conversation. I hope you are feeling ok today.  Ray xx

bo worries ray i am glad you have joined in as i am going to bed soon. please keep shimmering company. hope you are well ray sending big hugs abd love to you.xxx

Do get yourself off to bed. Hope you enjoyed your toast and thanks for the welcome 

Nyt

Thank you Soc, I'm ok, just getting older by the day and feeling it . 

Sweet dreams. xxx

goodnight and sleep well.xxx

Ooh hi and thanks for the welcome. Yes TURBT is what is planned but he is obese, has breathing difficulties, angina, had a heart attack etc so they are looking at his general health before proceeding.

I went to his appointment yesterday as the pal with autism was ill. The doctor was concerned about a few things including his memory. He has declined referral to memory clinic till after procedure etc 

Like a twit I waited nearly two weeks before going to hospital to get confirmation that ankle and elbow were broken. I have a bondage boot which is helping but for my elbow, the latest solution is what looks like a dressing gown belt, an inch and half wide strip of cloth with a bit of Velcro rather than a traditional sling.

Apart from reminding me not to use arm, don't think it's doing much.

Thanks 

Interesting. When I was scheduled to have a TURBT in 2017 after my diagnosis in late July, I had the pre-op tests and a heart anomaly was found. It was news to me. I then had an echocardiogram appointment which was the day before the scheduled TURBT. On the TURBT day, I was gowned up and ready for the final blood test before the op when the surgeon and anaesthetist marched into the cubicle and said the echo results had just been received. They were not happy to proceed until Cardiology had given further advice. I was told to get dressed, go home and wait for plan B when they'd come up with something. About 4 weeks later I had 2 weeks of medium dose radiotherapy. It was excitement I could have done without. xx

Sheesh! I bet!

This pal is in his 70s and has changed so much in the last 15 years, I know haven't we all.

He used to go walking with autistic pal using walking poles. Now he shuffles with a walking stick and at hospital yesterday was breathless after the 3meter walk test. 

He is generally unhappy with his health, I think the heart attack gave him a fright and he has been less and less physically active. He has been to GP about various things, a painful wrist etc and having spotted micro dots of blood in urine it was just another thing he mentioned.

Of course it has now been actioned.

How are you doing?

I joined the forums on here about 2.5 years ago because I was increasingly down in the dumps whenever my symptoms returned. My main symptom has always been bleeding. Nothing subtle. I was signed off in early 2019 for palliative, symptom driven treatment and have had permanent long term Foley urethral catheters since late 2018, replaced every 8-12 weeks or when blocked. I'm managing ok, living alone independently, driving etc but still have 'red events' quite often. 17 so far this year. The forum members have helped boost my morale, for which I am very grateful. Ray xx