Awake and up all night

Birdy hope you are ok there, toe pain is horrible its the nerve endings l think xx

Sorry you've got trouble xxx

I'm in the crap again, hubby been in and out of hospital 

They've kept him in tonight. His temp was 32 then 34 hes also got a large blood clot connected to the picc line, its an inch wide going from the bend of his arm to the shoulder then towards the line of the picc towards the heart.

He's not feeling well dehydrated  and blood sugar 25 pulse resting 108

No wonder they kept him in.

I am worried how l will cope hes taking a down wards turn they said

Wow xx how wonderful hope you can enjoy every minute you deserve a nice time xxx

Thanks Gill

Wrote update in another thread

I just hope he can turn it around but hes really not well and l had to stop nurse in his new ward trying to take blood from the picc line attached to the blood clot as it hadn't been passed on

She then took blood from his thumb when though l told her he had full bloods she took a gas test he just had in the last ward.

I despair at NHS no wonder there are so many unnecessary deaths God knows what would have happened if l had already gone home God help us.  I stuck a piece of paper over the picc line saying there's a clot and told the staff nurse. 

And I'm unemployed despite my extensive experience.  I have been filling out job applications for the last 3 months after every hospital visit as my long term unemployment is the perfect storm right now. Makes it all seem more scary 

One of my roles is a former medical researcher but l cant get a job for years now after redundancy and l have a lot of skill.  I was setting up his feeding line on the ward alongside the nurses stopping them using the bloody picc line and I'm just an unemployment statistic.

Hope hes ok dear Gill x

Just saw this Gill your kindness is more than appreciated thanks so much x

Hi i was diagnosed with oesophacal cancer again . 6 years ago I had it major surgery to remove the oesophagus and lymph nodes . They thought it had totally gone . Unfortunately at the beginning of March I had chronic stomach pains . I was admitted to hospital and had a ct scan . They discover 3 tumors near the pancrease . Which was inflammed they kept me in for 6 days and had an mri scan thats when they were 100 percent sure it was cancer . I had an endoscopy a week or so after discharge and a pet scan . I am now recieving chemo and a new immunotherapy drug I am taking part in a trial for the immunotherapy . I just feel tired all the time 

Morning Dingg  

I've just read your posts (sorry hon, I didn't wake up) and although I know you've had lots of issues, I'm glad they've kept hubby in for the equipment necessary close to hand at the very least.

Whilst he's there, enquire if they have anything in place for you to stay with him if you'd rather not go home overnight, as some hospitals accommodate family members.

About your finances Dingg, in the short term ask his doctor or CNS to forward form SR1 to the DHS for immediate PIP, stating the date of hubby's admission, as an award will be backdated to then. I'm unsure what other help you could apply for but you might be entitled to carer's allowance. Calling the Macmillan helpline could supply the answers.

Ah sweetheart, very little seems to be going well for you both right now, but we all hope and pray that hubby will be kept comfortable and any treatments will begin to have positive effects. Stay with him as much as you can as your love for him will give strength and comfort, and we're sending all our love to you both. Keep yourself well too hon, and get as much food and rest as you can manage. Warmest hugs and love, always xxx

Good morning Titan and a warm welcome to our group.

I'm so sorry to hear about your recurrence and it must have been a devastating blow to receive that news. It's something I fear all the time will happen to my OH, but that probably applies to most taking this journey.

I sincerely hope the immunotherapy will take charge, and start working quickly to get you well again my lovely.  Everyone in this group will want the same for you

You take good care and sleep when you can sweetheart. Sending you hugs and best wishes xxx

Thanks cancer can bog off . I got 2 grandsons one 4 and other one 14 weeks old i am going to see them grow up