Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hello  

    I know some people find it hard to talk about their diagnosis - and to be honest anything medical terrifies them!

    Look at me 5 foot 7 inches, 15 stone 10 (don't check my BMI - I already know!)  a man (Well OK I have no testosterone Angry)  and I can't stand the sight of my own blood and I am needle phobic!! I have been on my personal journey 4.5 years, I have regular blood tests, cannula's stuck in my arm and with having Prostate Cancer my dignity left the room even before the full diagnosis BUT

    I appreciate the treatment my team put me through is for my benefit so I am more that happy to overcome my fears.

    The beauty of The Community is we are anonymous (Ok I may give too much away about who I am - but I enjoy helping others) so why not have a look around the head and neck group on the Community - here's the link you need:

    Head and neck cancer forum 

    You don't have to post anything but there may be specific support for you there and my fellow Community Champion who looks after that group  would be more than happy to help you. (Bloody hell  's faster with the link than me!!).

    We are all here for you.

    Kind regards - Brian.

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  • We are all in this together, to help each other-that’s what it’s all about. I’ve found laughs, kindness, sympathy and all sorts in this group. I’m just envious of not being allowed Cornettos!

    This cancer stuff is hard, we’re scared, feel alone, we feel no-one really understands what we’re going through…but here, we absolutely do.

    Big hugs, lovely. 

    Sarah xx


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  • my son had it in the neck area and he had burn marks that cleared up quickly.

  • Brian, you know I don’t know you other as my friend on here, but I still have this picture in my mind’s eye of you smiling and with a twinkle in your eye-I’ve told you that before! 

    Both of us have had our dignity leave the room with our cancers, but I’m with you-my treatment was amazing and here I am to tell the tale! 

    Sarah xx


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  • big hugs to you sarah. could i just ask you i am not sure if you will know. how long will it take to start treatment?

  • There you go Sonia, your son and many others here have had RT.

    A common denominator is that all of them are still here, doing well and either on holiday or looking forward to going on one. We're all here for you as your other lovely friends have already said.

    Biggest hugs and love my lovely xxx

  • i hav made many friends on here gill. you uki sbird kez ray. sorry if i have missed anyone. it was the best thing i ever did coming on here.

  • It will depend on just exactly what the treatment plan is.

    I had the talk with my consultant about what my plan would be, and then I had to have a planning scan, which was a CT scan to measure me up and give me the little tattoos Helen mentioned.

    They needed to know exactly the position of my tumour so they could target the radiotherapy exactly to the right spot, and I was also having chemotherapy at the same time as radiotherapy so it took from mid September to the beginning of November for me to get going with it all once all the details were sorted out.

    Sarah xx


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  • sarah it is personal to you. like you say everyone reacts differently. no one knows about me apart from my family and my one good friend. i have not told anyone about my son apart from on here and my family. my son is very open about his cancer but he doesnt tell everyone.

  • so it is about a month. sorry thank you so much sarah it is kind of you to tell me.. it will give me time to digest it all.