Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Thank you for that reply to dingg uki.xxx

  • Thanks uki.glad to know you are staying. I have got my stash of muller corners.

  • Dingg, I've just nipped in between doing care, as I had to reply hon.

    The simple answer is you won't cope, with things as they stand. The hospital has a duty of care to hubby and everything must be in place for safety reasons before discharge. The risk of infection will also be taken into consideration as that's the last thing he needs right now.

    I'm pretty certain they won't insist he goes home until everyone's satisfied he can, and that includes you, Dingg. Under no circumstances agree to his discharge until both of you are 100% happy with it.

    Big hugs babe, and don't worry yourself about anything other than hubby's care and treatment in hospital xxx

  • You said exactly what I wanted to say Gill. 

  • I agree uki. Gill has done a great reply. I was just shocked they were thinking of discharging him.

  • Thanks Uki. What Dingg should remember is that a solitary nurse doesn't care for her hubby 24/7, gets breaks and knocks off at the end of their shift. Then others take over.  Home carers get none of that, so she mustn't feel bad about it. Besides which he's better off in hospital until they've got everything under control. I point blank refused to have OH home till I thought it was safe to do so, as the alternative would have been him going straight back in if I messed up his care. I wasn't prepared to be responsible for that.

    Super relieved you're staying put our kid xxx

  • As I said to Soc Gill, you have all kept me sane. I definitely need all your support. You have become such good friends to me.

  • Thank you so much Sarah. I appreciate your kind words. I found a purse once in the coop. I had no money at the time. I feel terrible now for thinking I should keep it. I handed the purse to the staff. I thought it could belong to someone who had nothing.

  • Sonia sweetie, I'm very much hoping you're asleep now but wanted to reply.

    There's a world of difference between what that tealeaf did and yourself - he chose to steal from your lad whereas you found the purse, didn't keep it and handed it in. I'll bet a few here have fallen on hard times, we certainly did in the past, but even if the temptation was there, you didn't succumb to it, so well done you.

    Now I'm hoping you don't have any more problems with logging in or other issues, as you're a valued member, just like Uki and all the others, and we all love you.

    At one of your painting classes, maybe you could do a portrait of Pippin and Nyx if you're given a free choice. Big, big hugs sweetheart xxx

  • Morning Dingg

    You're just getting to grips with your iv training, but these issues are beyond what you could manage to deal with by yourself at home.

    The hospital should not discharge your hubby till he’s well enough to be cared for at home, and you MUST speak up if they attempt to do this. There needs to be a discharge plan in place, because there’s a lot involved here as Gill said in terms of safety and infection control etc.

    At the moment, it’s too much for you to cope with, and it would be too much for anyone! I’m not sure about the stoma bag or how that fits into the process for your hubby. I’ve got 2 stomas myself so I’m used to dealing with them, but I’m not sure what this would be like in your hubby’s situation or why they would be using one.

    I’d be speaking to the ward manager, the consultant, and going higher than that if they suggest discharge without a plan of care and no guarantee of help for you-it’s just outrageous.

    I was discharged after my own surgery, in a wheelchair, exhausted and with no plan, which I know now was wrong. My OH was expected to manage alone and I cannot begin to tell you what a scary time it was during lockdown. We couldn’t even get district nurses to come. I wouldn’t want you to be going through that. Hubby needs to be in hospital till he’s stable enough to be at home.

    Sarah xx


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