Moving on.....

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Hi Wave 

How do you decide whether to continue with the mop up chemo or not? My body feels broken on a daily basis. I want to get back to living not simply surviving. 

I was diagnosed with stage 2 stomach cancer June 2024. I've had Flot chemo, a sub total gastrectomy and just had my first round of adjuvent chemo which was brutal. My problem is the effect is 50/50. It might help with early recurrence it might not. 

  1. I'm on a 2 week break to recover more then seeing if I'm OK to go again. I'm also pretty consumed with the fact I'm high risk for recurrence. 

How do you live with it all?

  • Hi  and I see it's your first post so a very warm welcome to the Macmillan Community but sorry to hear about your journey so far. 

    Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot....... I have a completely different cancer.

    Lets see if anyone with the same cancer will pick up on your post but can I recommend that you look to join and put up the same post in our dedicated..........

           Stomach cancer

    .......support group.

    This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thanks Mike.

    I've joined the stomach cancer group too. I guess this initial post is less about the type of cancer and more the issues around dealing with the fear of reoccurrence. 

    A friend of mine who's had breast cancer twice said its something that's always there for her in the background but she learns to live with it. Maybe something I'll eventually be able to do.

  • Hi again  it's all about developing a mindset that puts you into the position of 'you' defining how you live life....... rather then your life being completely defined by your cancer.

    Over my 25 years I have relapsed multiple times...... the first 15+ years the longest partial remission I had was about 9 months...... the shortest being 3 months...... before I was back on treatment....... (See my story)

    Back in later 2013 I was told that the plan that was now in place was the last roll of the dice....... and if it did not work I had a few years on the clock....... but I am 11+ years on.... still in remission, I turn 70 later on this year and I am living a great life.

    Yes one of my 2 rare types of blood cancer is just asleep but in these 11+ years a few new treatment options have come along so if it all ckis off again I have a fall back.......... so there is always hope and in my book HOPE = Have Only Positive Expectations.

    Good that you have joined the Stomach cancer group as there may well be members in the same position in the group.....

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge