My dads diagnosis

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Hi 

I’m new here . 7 weeks ago we got the news my dad had lung cancer, we were told it was very early stages and has not spread . Treatment would be surgery and radiotherapy. In the past 7 weeks he has had a pet scan , biopsy (which led to him having a collapsed lung and spending a week in hospital) 

yesterday we had a meeting with the consultant and we were told they have seen something else in his chest and they are concerned about his lymph nodes. 
He is having an ultrasound sound on Monday to look at the lymph nodes , if it shows the cancer is there then they are talking about chemo to control it. If it’s not in the lymph nodes they will treat the lung cancer with surgery chemo and radiotherapy, 

I’m struggling with the shock , as we were told 7 weeks ago that it is early and can be treated , I was just not selecting that news. . I’m also struggling with the fact it’s taken 7 weeks for a pet scan and biopsy results to be discussed with him! 
like absolutely terrified of losing him . 

  • Hello   Welcome to the online Community - I am so sorry to find you here. I can't answer your questions as I have a different cancer, however - the Community is divided into forums or chat rooms which are cancer specific. I would advise you to join our Lung cancer forum.  You can do this by clicking on the link provided. Once the page opens up, just click on the black banner at the bottom of the page to join the forum.

    Once there you will find Community members on the same or similar journey as your dad. You can either copy and paste or repost your post - I am sure you will receive plenty of answers.

    If I can be of any further help, please let me know.

    Best wishes - Brian. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • I'm sorry to hear about your Dad.

    My Dad is also very unwell. I'm finding the waiting and lack of care is shocking. It's frightening as they don't seem to be knowing what they're talking about.

    Sadly I have no advice as I'm in a similar boat.

  • Hello  I am so sorry to  to read that you are in the same situation. I notice you are not a member of any specific cancer forum.

    You can join the forum for your Dad's specific cancer by selecting it from this list Cancer types forums .

    Don't forget if you do need any help our helpline on 0808 808 00 00 is open 8am to 8pm and there are some cracking people there who can help you.

    If I can do anything for you please let me know.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hello Again  

    I have just notice your other post in "New to the Community". The links you need to the cancer specific forums are:

    Bowel (colon and rectal) cancer forum and Prostate cancer forum .

    If you click on the links provided, they will take you there - I have been living with Prostate Cancer for 27 months and hang around in that forum so I look forward to speaking to you again.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hang in there , I hope you get some good news soon and a treatment plan for your dad. 

  • Anything they told you at the start should have been framed as provisional until all tests had been completed, so that has been handled badly. I think once all tests are completed you should ask for another meeting with the consultant (NOT a "member of the team") for a full discussion and a chance to ask any questions that have arisen since the situation changed. They owe you that at the very least. The best way to arrange a consultation is through the consultant's secretary.