Frustrated

  • 3 replies
  • 16 subscribers
  • 372 views

My wife has started on a new treatment called capecitibine. She had cancer years ago and got rid of it but last year it came back. She was on the usual chemo but it wasn't working on certain area so she is now on her second week of treatment with a week off every two weeks. Problem with new treatment capecitibine it is really messing with her head. She is not very steady on her feet, she can't remember what she went into a room for, she can't remember anything she had done or said to her less than a minute or so. Now I am not the most patient person in the world but I am really struggling with her and she is struggling memory wise. I just wanted to get this off my ch3st in case anyone else is trying to deal with this. She (lynn) thinks I don't care but obviously I do, i know it's nor nice having cancer but it's difficult for someone caring for the one they love.

  • Hello   A warm welcome to the Macmillan Cancer Chat forum. I am so sorry to read of the side effects of your wife's treatment. Most cancer treatments have side effects and they do vary in how they affect different people.

    You didn't specify which cancer your wife is being treated for - and as the Community is divided up into cancer specific forums it may well be worth joining the correct forum from this list Cancer types forums . Once you have joined that forum you can connect with people on the same or similar journey.

    In addition to that forum there are two others where you can seek help and advice and the links to these are here Carers only forum and Chemotherapy forum .

    I agree it's important taking care of the one you love, but you also need to look out for yourself. If you need that "extra bit" of help may I suggest you contact our helpline on 0808 808 00 00 (8am -8pm 7 days). I am sure the lovely folk there can help you.

    You are right to get the issue off your chest - but at the same time we are all here for you and help is available.

    If I can do anything else for you please let me know.

    Kind Regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you for your reply I have attached part of the letter with the details, if you could move this post to the correct forum please?

  • Good Morning  

    Thank you for your post. I am so sorry to read of your wife's diagnosis - I can appreciate your worry in looking after her. 

    I think the best course of action here is for you to join these two forums (If we move the post it won't make sense to people on the forum). The links are here for you:

     Breast cancer forum  and Secondary lung cancer forum  

    If you click on the links provided, these will take you through to the two forums. Once there if you click on "join" on the black banner at the bottom of the page, you will then be connected with people on the same or similar journey as your wife. You can then introduce yourself in the "New here - say hello" section. Just click on the +New button and you can detail your wife's journey and I am sure the Community members will be able to help you.

    I hope this helps, if I can do anything else for you, please let me know.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.