I feel stuck

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I’m 16 currently really struggling with carrying on my treatment for ALL cancer. I have a loving family who have been amazing at supporting and caring for me through the treatment so far, though I’ve been feeling depressed lately. As I see my family going on walks and enjoying food and other things together that I can’t,  it really hurts. I know they are not doing this with intent to hurt me and I feel guilty for getting upset about it but I just feel stuck. I don’t want to burden them by telling them how I feel as they already do so much for me and I know they won’t really understand what I’m feeling either. What should I do? 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm very sorry to read that you're struggling with your treatment for ALL. I haven't had this type of cancer but I do understand how treatment can feel relentless at times.

    As you know, the online community is divided up into different support groups so I hope you don't mind me suggesting that you join the ALL group as it will give you the opportunity to ask questions, share experiences and get support from others with this type of cancer.

    To join just click on the link I've created and then choose 'join this group' on the pages that open. You can then introduce yourself and ask questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    When you have a minute it would be really useful if could pop something about your diagnosis and treatment so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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  • Hi Lollipop06 and well done on being brave enough at 16 to post on here, anything like this may be seen as just for grown-ups.  As well as the ALL group there's also 'Diagnosed at a Young Age' forum which may be worth joining too.  You will I hope find others nearer your age who feel the same way towards their family.  To me it sounds like you're having really normal feelings so please don't feel guilty. When you're exhausted and don't have the strength to join in it's bound to make you feel envious of others who can get up and run around. Anger and frustration at the ALL itself for changing you, sadness at feeling left out of things - these are all possible very normal emotions to experience. 

    I'm sure there may also be other very specific groups just for teenagers. Google will probably have a list I'm sure.  I'll have a hunt.

    Take care and please don't worry too much, you are allowed to feel whatever you want. Cancer is a terrible disease and does make us all feel very different both during treatments and after we've recovered.  

    Take care, I'll post again with some ideas re teenage Cancer groups that might be worth a try. 

    Lucy xx

  • I'm not in the UK but here we have an organisation called Canteen, which is a cancer support organisation for young people.  I'm sure Macmillan would be able to direct you to a similar service in the UK