Brain tumour

Hi

I'm sorry to read about your husband and it's natural to want to talk to others who have experienced something similar.

As you know the online community is divided up into different support groups so I'm going to recommend that you join the brain cancer or glioblastoma multiforme brain tumour group, depending on which one is the most appropriate, and also the carers only group.

The first two groups are great places to ask questions and share experiences with others who either have this type of cancer or have a loved one dealing with it while the carers only group is a safe place to share your worries and concerns with others who are looking after a loved one with cancer.

To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'. 

It would be great if you could pop something about your husband's diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi Teesie, my dad was diagnosed with stage 4 brain tumour a few years ago, all his treatment has now stopped after being on chemo and radio for 2 years. I've been struggling as has my mum, I've been seeing a counsellor to help but to be honest, it's so so hard. If you need someone to chat to, you're not alone, feel free to drop me a message, I'm not sure how these threads work but i can give you my number x

Hi  and welcome to the online community

I'm sorry to read that your dad has a brain tumour and that his treatment has now stopped.

I can see that you've joined the supporting someone with incurable cancer group and I'm sure you'll find that it's a safe and supportive place to talk to others in a similar position.

It's kind of you to offer to chat with Teesie but because everything you post in the community is public the Community Guidelines don't allow the sharing of personal information such as your telephone number. 

You can send a private message to them through the community and clicking here will take you through the step by step instructions on how to do that.

x

Ah thank you, it's my first time writing using the community, so am new to it all :) 

Hi Sophie, Thank you replying to me.
 My husband died on 7th of this month. Not through his brain tumour ( which he came through in the top 5% survival rate) , but when he was in hospital with a blood clot on the lungs, which cleared up. He died battling, sepsis, which he fought off.  . then c diff,which he fought off. Then  Mrsa ,which he fought. and finally Covid. All of which he contracted in hospital.I’m heartbroken. It should never have happened never. 

Oh gosh I am so so sorry to hear that! :( what a tough fighter he sounds! Sending all the love, hugs and prayers to you and your loved ones xxx