Lymphedema

FormerMember over 3 years ago

2 replies
13 subscribers
777 views

Hi, I've recently had a re-incision to clear margins for breast cancer, have now developed lymphedema in my left arm after lymph nodes removed.

I have been referred by my doctor for physio, been 4 weeks and have another 3weeks to go before I even seen anyone, getting worried as condition is getting worse, arm restriction and pain is awful, trying to massage myself, take painkillers only sort of numbs the pain, but not completely...

Question: is this an on going situation I have to deal with forever ( constant) reminder, I've had cancer, if that wasnt enough, now I have a little and large boob.

Read there is no cure!!!

Anyone else in this situation ....would like to hear from you

Trying to keep smiling ...but struggling with daily life

ownedbystaffies over 3 years ago

Sorry no one has replied. Your question might be better posted in the Breast Cancer forum, as there will be plenty there with experience of lymphoedma. It is not nice to feel so much in pain and anxious about the wait for physio. It might be a good idea also to post in the "ask an expert" part of the cancer experiences groups as then you will get an answer from someone with clinical knowledge. Sorry you are struggling, hopefully one day you will be looking back on this.

lily0403 over 3 years ago

Hi. I have lymphedema in my right arm after mastectomy and node clearance. It is an ongoing problem but can be managed if you have the right equipment. Ask to be seen by the lymphedema clinic. They specialise in this and will give you compression garments to wear. They will also show you how to do the massage properly by yourself. Physio can only do so much for the muscles and movement, the clinic is much better for controlling the swelling . I hope this has been helpful.

Lils. Xx

Lils x