Treatment plan

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Hi everyone

I’m at wits end my plan has always been chemo radio and tamoxifen, had blioods done on Tuesday 4th for chemo starting Friday 7Th also went to an appointment on 5th to sign forms of consent and the doctor said he didn’t want me to have chemo due to health problems, coronary heart disease and diabetes to which I have none of these and told them so ,I broke down as in shock and actually went on own He then got consultant in and they tried to bully me into having radio tamoxifen and zoladex right there and then without discussing pros and cons , they basically turned my world upside down as I’d mentally prepared myself and family for chemo journey as it is a benefit which they offered , I was absolutely in shock and went on own as it was just to sign consent it was just horrific this thrown at me , I asked consultant if I weren’t healthy enough for chemo she actually said she thought I was healthy that wasn’t her concern yet it was when I first walked through the door from the wrong info they had , I refused to sign anything for new treatment as didn’t know enough and head was a mash they said they’d phone next day for my decision which they did and I said I wanted chemo as score came back at 23 and due to been pre menopausal and unde 50 anything over 16 chemo would benefit me hence why was always on my plan right from mdt meeting and offered me , he then said …wait for it …. Well I can’t prescribe it this was basically said 16hours before chemo to start , my heads a mess everything closed so getting back to Macmillan nurse on Tuesday when she’s back as she tried to get hold of them Thursday but was unable and think it’s appalling also

it has been the most stressful part of my journey so far it’s made me ill with anxiety and depression

any advice really would be welcomed

the doctor also told me he’d make me another appointment possibly could be three weeks time it’s already 83 days since I had op and still no treatment

many thanks for reading this if you are I’m just broken at the minute the way they have treated me

9 Apr 2023

Hi Ginbin73,

I’m Dylan from the Online Community team. I was very sorry to read all that you have gone through recently and that you are struggling with anxiety and depression. How are you dong today?

I wanted to offer some support whilst you wait for other group members to reply. You may benefit from posing in our Breast cancer forum, as there is the likelihood that more members would see your post in there and have the opportunity to reply.

Have you mentioned your anxiety and depression to your GP?

It sounds like you are processing many emotions right now which is understandable, considering what you have gone through recently. We see every day how people find it helpful to express what they are going through and talk with others who can offer support. I wanted to highlight two other points of contact that you could reach out to for support:

You can contact our Support Line today. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat. They are here to listen and help you find the right support.

We have a partnership with BUPA where you may be eligible for up to six free counselling sessions, you can contact us to arrange a well-being assessment or even refer yourself from the website, I’ve put the link to the page here.

I am glad that you reached out to our Online Community, and I hope you find the above information helpful. If you have any other questions or need further support, please get in touch. You can send a private message to the Moderator account or email us at community@macmillan.org.uk.

Best wishes,
Dylan
Macmillan's Online Community Team

zephyr over 1 year ago in reply to Dylan - Macmillan

I am so sorry your plan has changed without warning. I noticed they are suggesting tamoxifen. Is there any chance you might be offered abemaciclib instead of chemo? It has quite a list of side effects but might be worth asking the question of your oncologist. I hope you can get another appointment to discuss your concerns with your team x

Ginbin73 over 1 year ago in reply to zephyr

Tamoxifen is because I’m premenopausal and zolodex but I was always offered chemo due to onco type score as it would benefit me

I don’t want the other and all side effects defects xx

Yulia over 1 year ago in reply to Ginbin73

So sorry to hear about that!

I also felt like I was being bullied into signing forms on the spot, after listening to 40 minutes of ALL KINDS of crazy information with no warning or time to think. It can be so disorienting and scary! Also the sudden change of plans is super unhelpful, as ANY treatment plan has so much to get used to and accept mentally.

I hope you find a way to resolve the situation!

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