Hi there, I’m Katie 36 and just wanted some advice or people’s experiences if possible?
My Gran had breast cancer in 1984 and at the time had a radical mastectomy where she had her breast and all lymph nodes removed from her left armpit. She made a full recovery and lived for a further 12 years before dying of natural causes.
My Mum (Gran’s Daughter) was diagnosed with breast cancer and it had also spread to her lymph nodes in left armpit diagnosed June 2016. She too had mastectomy and lymph nodes removed and she opted for breast reconstruction in same surgery. Also had chemo and radiotherapy. And many other treatments as the cancer returned and spread drastically.
Mum was petrified it was hereditary especially after her Mum having had exactly same cancer so Mum was checked for the BRCA gene which thankfully she didn’t have. I lost my beautiful Mum in November 2020 and since she’s gone I have been worrying so much that il end up getting breast cancer. I know I am at higher risk of getting it due to family history my Mum’s Auntie also had ovarian cancer and I have had to have surgery to have 14cm cyst removed from my ovary all just dermoid cyst nothing sinister. My eldest sister who is 45 has had to go on tamoxifen as something showed up on her mammogram and I am still 3 and a half years away from having my first mammogram due to me having them start at 40 with my family history.
Has anyone else here experienced this? My Mum was a nurse and when she found the lump on herself she said she had been waiting for the day as she knew she’d get it like her mum. I worry so much and w Mum has gone I feel I can’t ask anyone else
Hi Twinkle1984
A very warm and gentle welcome to the community. I'm so sorry to hear about your mum and gran - it must be a difficult time for you just now having lost your mum so recently and I hope you are able to access some help with that if you need it.
I think it's natural for you to be worried that you will develop breast cancer but if your mum didn't have the BRCA gene then there's as much reason to think that you won't. Unfortunately, breast cancer is very common and affects, I think, one in eight people in the UK so coincidences of families getting it are quite likely.
It's still very soon after losing your mum so it's understandable that your mind would be concentrating on her and the illness that dominated her life for the last 4 years. Getting through the grieving process takes time and I hope that as you work through that, the fears that you have about developing cancer yourself will naturally subside.
You seem to be worried that your mammogram screening is over 3 years away - the majority of breast cancers are found by women themselves so it's important that you keep checking your breasts and see your GP if there is anything you are unsure of. This might not seem like the reassurance that you want, but it really is the best thing you can do to help protect yourself and begin to reassure yourself that things are OK.
I'm adding a link to Macmillan's breast cancer leaflet which has instructions on how to check your breasts
You are welcome to chat to us as much as you like, there is also a main Breast cancer group which is a little busier and you'll get a warm welcome there too. Lots of people post in both groups so feel free to join in wherever you feel comfortable.
I can see you have already found our Bereaved Family and Friends group - that's also a good place for you to get support.
Macmillan is here to support anyone affected by cancer so you can also use the support phone line if you ever feel you need to talk to someone (0808 808 0000 7 days a week 8am -8pm)
I know this is a very difficult time for you and I hope that you are able to find some support and solace here.
Sending virtual hugs
R
Thank you very much for your message.
I think I worry a lot because although my Mum was tested and was BRCA negative could my Gran of had the BRCA gene? Could it skip a generation? If my Gran had it would my Mum of definitely been positive for it?
it just upsets me that my Mum who was a nurse when she found her lump she said she was waiting for that day she knew she would get breast cancer one day. I just find it very weird how Gran and Mum both had exactly same too in same breast and in lymph nodes in armpit.
I find the bereavement group very helpful and I’m so pleased these groups exist.
I did brave the shave and raised £1,800 for Macmillan in September and I’m so pleased I did as it’s such a worthy service x
Hi Twinkle1984
That's an excellent amount of money to have raised through Brave the shave - well done!!!. I am not very good at fundraising but try now and again - every little helps.
I'm glad to hear the bereavement group is supporting you - it's a difficult time and most people need support to get through - it's good you know there is somewhere you can go.
As for the BRCA gene - as far as I know, if your mum didn't have it, she can't have passed it on to you so I hope that helps a little. There is some information about it here
It is strange that both your mum and gran had it on the same side but it probably is down to coincidence.
Once I had a cancer diagnosis, the one thing that struck me was that I wished I'd been a little braver and carefree throughout my life - I am now and I encourage my daughter to be. It's understandable that you would feel this way right now - this is all still so raw for you. But do remember, as time goes on, not to dwell on thoughts that you will develop breast cancer. I hope once you have grieved and have learnt to handle that grief (I'm not sure it ever leaves us entirely) that you will be able to put those thoughts aside and live your life with joy, not with a constant worry.
R
Thank you for the reassurance. My Mum was always very matter of fact and always said “What will be will be” she always lived her life to the full. She just turned 70 in August and although she was so unwell we managed to get her away to Bournemouth and she even got in the hot tub for her grandchildren and we made some amazing memories as well as having a small party due to covid restrictions we could only have less people but we still made it as special as we could. After that day Mum was bed bound til she passed 2nd November. I wish to continue fundraising and helping to try and make a difference. I did brave the shave to support mum as she just lost her hair for the 3rd time due to chemo and she hated loosing her hair she always looked so beautiful to me regardless but it was her identity and she always liked to look good. I’m so glad she was there for my brave the shave and knew how much I had raised too. Even then I had to shave it all off again for her funeral as it was at a dodgy growth level and looked awful lol. I asked her what I should do with my hair if I should keep it short and she said no to grow it again so I am growing it again and it looks awful at such a bad stage of growth but it was so so worth it to be able to support my mum and raise money for such an amazing charity.x
Your mum sounds like an amazing and strong woman. So do you - and it's great that you are making a difference with your fundraising.
Don't worry about your hair - that stage will soon be over, maybe by the time lockdown ends!
Take care
R
Hiya Katie,
My Mum and her mum had breast cancer. Both had successful mastectomy operations.
Nan died 27 years after her ductal cancer (in 1997) we don't know about the BRCA gene.
Mum is 76 this May. She does not have the gene. Had mastectomy at 36 in Blackpool Victoria Hosp and was a 'guinea pig' for Tamoxifen...her operation was 1981. when I went to BVH with my cancer the consultant stood and shook her hand for being a guinea pig!
(gosh I hate that term...I have five treasured little girl guines pigs!)
My cancer is ductal like nan's but seemingly that's common.
Regards and best wishes.
Yvette x
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