Recurrence

FormerMember
FormerMember
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Hi all,

I am new to the group but feeling like i need to reach out to the community and hopefully find somebody who has had a similar experience to me - here is a brief history of my journey so far;

- 2016 (age 32) diagnosed with grade 3 DCIS, i had a bi-lateral mastectomy (i opted to have healthy breast removed), and results showed grade 1 cancer. I have been on Tamoxifen since the surgery as im hormone receptive (hopefully thats the right terminology!).

- 2019 i noticed a lump on the breast where the cancer orginally was, had an ultrasound and they said it was scar tissue

-  2020 the lump has been playing on my mind so i went back to the breast clinic, they did an mri and biopsy - initially they thought it was scar tissue around my implant, but the biopsy has shown grade 2 cancer. Initial plan is for further surgery to remove more tissue, and then radiotherapy, but on the ultrasound one of my lymph nodes was looking enlarged, i've had a biopsy but i guess if that comes back positive then i'll be on the road for chemo.

This all happened yesterday so im still going through a wave of emotions which i hope will stabilise over the next week - more so i guess when i get the results of the biopsy and really know whats happening. I dont think its the treatment so much that is worrying me, but more anxiety of what could lie ahead....at 37 years old i feel like im quite young for this to have happened again? i have 2 children and a loving husband and im sick with worry that my life is going to be cut short - not quite sure how to stop feeling like this and live each day as it comes and make the most of the now?

Sorry for the long post - would love to hear from anybody who has a similar story, or just to chat.

Thank you

Sarah x

  • Hi Sarah

    I'm really sorry to read about your breast cancer recurrence. It must be an incredibly hard time for you and your family.

    I don't have any experiences with this to share with you but I noticed that your post hadn't had any responses yet. By replying to you it will 'bump' it back to the top of the discussions list again.

    I hope you don't mind me suggesting that you also post this in the main breast cancer group as it's a lot busier than this one and I'm sure you'll get a reply if you post there. Clicking on the link I've created will take you there if this is something that you'd like to do and you could copy and paste your post to save you typing it out again.

    When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Hi Sarah, I've had a similar journey.

    February 2011 (32 years old) invasive ductal carcinoma right breast. Lumpectomy, full lymph node removal followed by chemo, radio and tamoxifen until new diagnosis.

    August 2020 ( 42 years old) new primary carcinoma of left breast. currently had chemo 12 out of 16 weeklies. Herceptin planned for a year. Mastectomy planned for March 2021 deciding what to have done- thinking about double DIEP

    Hopefully you've got your results by now and know what your treatment plan is. Hoping all is okay. 

    It is horrible to go through this again, Im 42 and I've got a 12 year old and a 10 year old. I was doing well after last time as it was years later i was re diagnosed,  but after being re diagnosed it does make me worry about the future. For me, at the moment everything is on hold and I'm just taking one day at a time and not making plans. I just keep looking forward to the day when all my treatment is over and covid has gone and I can just get back to 'normal'. 

    Sally x

  • Hi Sarah, It's awful to go through this once without having to go through it again.  This is my first diagnosis (found out about 10days ago and waiting for my op) but I do have a friend who had to go through it twice and she is absolutely fine now.  There are no guarantees for anything but with breast cancer prognosis seems to be really good.  i also worry that my time will be cut short as I'm sure most of us do but for so many it isn't so I would hang onto that.  If you need to talk you can message me or you can also try the AWAKE thread where in my experience someone always responds.  Quite often someone is on, sooner or later, even in the early hours.  This might take you straight there https://community.macmillan.org.uk/cancer_types/breast-cancer-forum/f/breast-cancer-forum/128753/awake/1520224#1520224  Hope you are feeling a bit better today.  Wishing you all the best.