Hi Everyone
Hoping someone could give me some advice, information and set my mind at rest! (Long story, so I will say sorry)
Im 43 and I have just been diagnosed officially with Breast Cancer. I was told that I had cancer 13th August, from the mammogram and ultrasound, but I had to wait until the biopsy to confirm the type etc. That happened last night. I have been given a lot of information, and feeling very overwhelmed with everything, but feeling a lot better now I have some idea of whats about to happen. I was hoping some of you may understand some of the procedures, and explain them from a personal point of view, rather than the clinical point of view. I appreciate my story/experience will be different, as all our treatment is personal to ourselves. But knowing what to expect, from a patient I feel may help me.
What I know so far is the following:- I have a 2cm by 2cm lump in my lower left hand side of my breast, which is confirmed as Invasive Ductal Cancer. It is confirmed as grade 3. On examination, my consultant thinks it maybe bigger, nearer 3cm. But she is a little unsure. The lump is usual very soft of squishy, and currently a little swollen and harder from biopsy still. But I do not have my HER result. The scans and examination so far has shown no issues in my lymph nodes. I need to return to see my consultant on 27th Aug for HER Result, and to finalise my start of treatment.
The current plan is, if the HER status is negative, then I am to have a LICAP flap, lumpectomy and reconstruction, which has been fully explained to me. And Lymph nodes removal on same day to check for spread To perform the Lymph node removal, they need to inject me with blue dye, through or near my nipple, which will show up the nodes. By all accounts this will turn me blue? As long as the nodes are clear, and they get clear margins, then its radiotherapy and tablets for 5-10 years.
If the HER is positive, its chemo to shrink the cancer, then the LICAP Flap, etc.
And depending on the Lymph nodes status, treatment will be discussed when we know something.
My consultant sounded very positive, but it was all very clinical.
Next was the breast care nurse. She was lovely, and went through all my notes. She said what is planned is aimed to cure the cancer, so very positive news. And I asked her about the stage the cancer was. The BCN said, we didn’t have a full picture, which I do understand. But based on the size, and the initial scans on lymph nodes being clear, she estimates a stage one cancer. But stressed it could change depending on biopsy on my nodes
I was hoping that some of you may have had these procedures, and talk me through them a little, from a patient point of view. And give me a little reassurance on what to expect.
Thanks in advance xxx - PS tried posting in another area, with no replies so far!
Hello, I haven't had all these procedures exactly, but just wanted to send a note to say hello and acknowledge how hard it is to manage all this. It really comes as a shock when we're still so young. I'm 45 and just had a mastectomy and node biopsy for a massive lump of DCIS. Boobs too small to consider a lumpectomy, though I think they would have done if there was more breast in the first place. I can't have reconstruction till later as I will almost certainly need radiotherapy.
In the end I never had the blue dye. Pre-op it was explained to me that this procedure is not normally used in the hospital I was at (Western General in Edinburgh) as there are other (newer?) ways to identify the location of the nodes. I'm not sure if it's helpful to know that, but it might be worth checking if you'll definitely have the dye?
One thing I would recommend is to get your shoulder area as limber as you possible can before the op. I was doing shoulder stretches right up till they came to take me to theatre! I do think it's helped me as I've not found the physio exercises too challenging so far. The node removal and the position they have you in during the op can do a real number on shoulder range, but you can prepare for it and they'll give you exercises after.
Very best of luck xxx
Hey ladies, so sorry to hear that you are both going through this. Kelstar9
I was diagnosed with Hormone receptive BC in Oct 2018, mine was invasive lobular cancer. I had a left side mastectomy on 20 Oct 2018.
I was first told no lymph node involvement, then I had a fine needle biopsy which was inconclusive so they removed the two sentinel lymph nodes which came back as positive of cancer so I went back to surgery in Nov 2018 for node clearance.
The procedure for the blue dye is ok, they can numb the area, the blue dye in my case lasted quite a long time. I don’t about the LICAP Flap Sorry.
If you want to know anything else just let me know x
hope everything goes well for you, let us know how you get on x
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