New diagnosis

FormerMember
FormerMember
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Hi. I'm 38. Just been diagnosed with lobular breast cancer, right breast, 4cm tumor from Ultrasound, her2 negative, er positive. Had mri last week. Back to clinic this week. Hoping for more clarity and treatment plan. Worried its spread. Thought I felt fine at time of diagnosis but had lots of aches and pains since. Don't know if psychological, stress related or real? Feel intermittent pain in breast. Don't know if it's breast or chest /ribs. They've mentioned surgery but what if it's inoperable? Xx

  • HI  earlgrey

    until you have the next appointment with your doctors you will worry so no point in saying dont  , what i would say is try your best to distract yourself  by doing things , anything  work, shopping  meeting friends  reading   candy crush  anything that stops the cancer thoughts from being the only ones in your head

    I   like many others on this forum know those  aches and pains that seem to come from nowhere between knowing we have cancer and  awaiting the actual details of the diagnosis and then  for many when we hear no spread all those aches and pains disappear    i think it  stems from tension in our muscles and the general shock to the system that  being told you have cancer  causes

    just to say psychological stress is as real as physical pain from broken bones

    my lump was 6cm   and operable   and i am here back at work   living life to the full 3 years later so  try to think positive thoughts

    sending you a virtual hug  knowing how lonely and scarey  this time period is until you get your plan and have something concrete to focus on

  • FormerMember
    FormerMember

    Hi. Sorry to hear. It sounds like we have a similar diagnosis. I am 42. I have a 3cm (think) tumour in right breast, also a smaller one in right breast and some cancer cells in lymph node. I am also HER2 negative and ER positive. I start chemo on Friday. I’m getting mastectomy after chemo, followed by radiotherapy and then hormone treatment. It feels like the start of a very long haul but I’m feeling positive. The worst part so far is waiting for all the tests to be complete. Fingers crossed for you x

  • FormerMember
    FormerMember in reply to ursula2

    Thanks so much, very helpful and encouraging. What other treatments did you have and had it spread to lymph nodes? They said my axillary was clear on ultrasound but what more does the mri tell? X

  • 20% of positive nodes look clear on ultrasound but aren't (one of mine was positive,  with 6mm deposit SFO I had clearance a few weeks later). The MRI can also spot any other areas,  and less obvious areas in the breast as it is more detailed. They want to know everything so they can treat you properly, but for most women it's clear.  I had 2 CT scans,  an MRI on my liver and a nuclear full body bone scan and it was all clear:)

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,