Hi Folks,
I asked this in the group specifically about living outside the uk but there was no response. Another user suggested I post it in the breast cancer group but I've chosen this one because my Jen is under 50, so I suspect the hormone suppression is more relevant? My apologies if I'm wrong. Treading somewhat new ground at the moment.
So, my Jen is having monthly Zolidex subcut implants. There's a three-monthly one, but the oncologist has expressly stated that she is not to go on it - less effective or something? Anyway, we've bought a big ol' motor caravan and we're going to drive down the Spanish coast for a few months this coming Spring/Summer. The problem:
NHS will *not* let me do the injections, despite me having no issues to pay for training or whatever is needed.
We have no idea how to go about getting Zolidex in Spain. Normal meds, sure - just look for the big green cross or google maps, right? No idea when it comes cancer treatment.
Current rough plans are:
1. Jen flies back each month.
2. We contact hospitals we know will be on the itinery at the approximately appropriate time (we're flexible) and book the treatments in advance.
3. Go private and get the training and meds we need to provide Jen's continuing care without third parties.
I'm thinking '1' is the worst case scenario - the fallback option.
Anyone else faced similar problems?
Many thanks in advance.
Dom.
x
I’m sorry you haven’t had any replies and I sorry I can’t help you. I’m guessing you have been to see your GP as you say you would not be allowed to inject this yourself.
There must be someone who can help you both out. I really hope you can sort this out x
Hi Dom.
I spent 3 months in Sicily with my kids ( and in-laws) last year. I am on tamoxifen and zoladex. I told my oncologist before and we just agreed that I would be scanned just beforehand and soon after returning. I told him that my husbands aunty (an oncology nurse) would do my injections. My GP just gave me prescriptions for enough tamoxifen and 3 zoladex injections, and EMLA (?) Anaesthetic cream. I got the medication here and took it with me. Nobody had a problem with it. Nobidy really questioned it at all. Nobody checked the qualifications of my husbands Aunty. And my husband (no medical training) actually did one of them - we were on holiday in Northern Italy by that point. It's not hard - the instructions are pretty thorough on the packet. It was fine. Though I am quite young (38), am keeping very well despite the cancer, and had been on zoladex for 2 years at that point, with no problems whatsoever.
Who is being difficult and saying that you can't do it? Can you bypass either your oncologist or GP by asking the other? Or a breast cancer nurse - sometimes they are more realistic/ practical about life and living with cancer. Flying back every month sounds expensive. ..
Good luck, I hope you get it sorted. And enjoy Spain!
This may sound like an extreme option but your wife could have an oopherectomy which would mean no need for the zoladex injections. A few of my Breast cancer friends have had the op because of the inconvenience of monthly injections.
I have just started on zoladex and I don’t think it will be too much of an inconvenience as I have to go monthly to hospital anyway for targeted therapy.
Lots to be taken into account of course but just thought I’d mention it.
Hi Folks,
Thank you all for your kind words and helpful suggestions. I'm sorry for the delay in response - I'm insanely busy pretty much all the time at the moment.
We're going to opt for Cathy35's suggestion - securing the prescriptions with the intention of them being administered at hospitals in Spain. At least, that's what we'll attempt. I'm happy to do them myself but given the choice between me and a suitably qualified professional, Jen will naturally opt for the latter.
From what I can tell with the oophorectomy, it's beneficial for BRCA mutations but comes with additional risks and adverse effects otherwise? I don't *think* Jen has the BRCA mutation so the benefits may be outweighed. It's definitely useful to be aware of though.
Thank you again for your collective input. It's very much appreciated. I'll let you know how we get on.
Dom. x
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